[Cristiane]

Hello everybody
My name is Cristiane, I'm a 25 year old daughter of an amazing woman who is fighting for her life ever since we discovered she has ALS, about a year and a half ago. I've been living on my own in New Jersey for 4 years, and my whole family is in my native country of Brazil, which makes it very hard for me, I go home once a year, and talk to them everyday. Communication has been very hard lately, and now I can only understand her when my brother is around to help, and today for the first time she had to write down a message for him to transmit to me over the phone. I am trying to find a device to help long distance communication, as she is not computer literate. Any help will be deeply appreciated.
Love and hope for all;

Cristiane

[dorrie]

Hi Cristiane! Welcome to Neurotalk. I am sure someone will be along that can help you. It must be hard only seeing your family 1 time a year! Well we are a group of great people here and I am sure you will like it here alot! Take care and see you around the forums!! Dorrie

[AfterMyNap]

Hi, Cristiane, welcome to NeuroTalk!

That situation has to be so difficult for you, I'm so sorry to learn about your mother having ALS. Ugh, it's such a difficult path.

I don't know what kind of communication technology is available in your homeland but wonder whether they have TTY, which is a teletype telephone system that uses a small printer similar to that of an adding machine. The deaf use it to communicate by phone.

If your mom is able to write, perhaps she could use a TTY to talk to you in her own power. You would be able to read her messages in real time while on the line with her.

Here is a link to the ALS forum where some of the good people might have ideas for you:http://neurotalk.psychcentral.com/forumdisplay.php?f=6


I sure hope you can find a solution, I'm sure your voice does a world of good for your mom's spirit. You sound like a wonderful daughter!

[shiney sue]

Welcome to NT,after my appointments at the hospital,i will be happy
to see if the Chapans or Social Workers know. This must be so very
sad for you. Promise to keep posting,i'm sure of one thing we will do our
best. Good thoughts coming your way... Sue