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Old 02-06-2019, 06:56 PM #1
AtticusFalcon AtticusFalcon is offline
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AtticusFalcon AtticusFalcon is offline
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Join Date: Feb 2019
Posts: 13
5 yr Member
Default non-diagnosed SFN (non-diabetic)

Last summer I started having bilateral intermittent burning in both feet. Annoying but not painful as it turns out. I first went to my primary care physician who ruled out large-fiber neuropathy, and encouraged me to see a neurologist if the situation persisted in several months. The first neurologist I saw looked at my comprehensive blood work, did a clinical exam, and said it wasn't neuropathy. He didn't give a diagnosis and spent about 10 minutes. So I went to see a second neurologist (both are board-certified and both are at academic institutions).

The second neurologist also looked at the labs, did an exam, but was reluctant to call it neuropathy, although he did say burning feet align with small-fiber neuropathy. The second neurologist spent about 45 minutes so I do feel the exam and history was more comprehensive.

The caveat, he said, was that neuropathy isn't intermittent, and in the absence of numbness or weakness or tingling, on and off burning (and I'm not a diabetic or pre diabetic) didn't warrant a diagnosis nor further testing (he said nerve condition is not only a bit painful but would be unlikely to show anything).

I was a heavy drinker for 20 years and beyond that, I can't find anything else to attribute this to (which I told the second neurologist about). He said it could be, but very well may not be related to my drinking, but if I felt it was, that it best I stop (and I've been dry this entire calendar year).

I'm not sure what to make of it, and it's been with me for nearly 6 months off and on.

I'd like to hear from others either diagnoses with small fiber neuropathy or who have not been diagnosed with SFN but show demonstrable symptoms. Especially those with a history of alcohol use (or abuse, as may be the case
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Old 02-07-2019, 12:49 AM #2
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kiwi33 kiwi33 is offline
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kiwi33 kiwi33 is offline
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Hi AtticusFalcon

Welcome to NeuroTalk .

The PN forum (https://www.neurotalk.org/forum20/) is very active so I am sure that if you introduce yourself there yourself there you will get lots of support and good ideas from other members.

As far as the possible effects of alcohol are concerned I used to abuse alcohol and developed moderate PN in my hands. I stopped drinking years ago and my PN is now quite mild. That may be an encouraging sign for you.

You could check out this thread https://www.neurotalk.org/alcoholism...ml#post1272118 .

It is very supportive for members who are at various stages of dealing with alcohol abuse.

Best wishes.
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Last edited by kiwi33; 02-07-2019 at 03:51 AM. Reason: Added some more information.
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