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Old 06-18-2019, 05:03 PM #1
focusedd focusedd is offline
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Join Date: Jun 2019
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focusedd focusedd is offline
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Join Date: Jun 2019
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3 yr Member
Default Hello my name is Daniel. I fear i might have NLD SFN.

Im 22 years old. Engaged. So in january i thought i had testicular cancer cause i found some tiny tiny thing on my right testicle, googled and scared myself to death and my balls were aching and my stomach so i went to a urologist who said its all fine and good and every pain stopped. Then i hurted my knee on the beginning of february, and it was painful and it burned so bad for a month and a half, i was taking glucosamine, chondroitin and indomethacine, and was going to physical therapy and electrostimulation of muscles around knee. The burning started spreading from my knee over to my other knee and then calves and feet and also thighs. I also got new insoles for my super flat feet around that time. I was treating my anxiety with xanax and clonazepam, my feet were burning and cold at the same time, my whole legs were burning i was terrified so i googled and found MS. I also found a guy on reddit with the same exact symptoms and i thought that is it its over so i went and did the MRI of brain and spnal cord and it was all fine. My pain disapearred. Then the twitches came, and they were full body so i googled and found about ALS, did the EMG was fine, the twitches didnt stop so i found out about BFS, then the sensory **** on feet kinda started to come back so i found on Wikipedia that 82% of people with SFN have benign fasiculations. And here i am scared ******** of SFN, waiting for my appointment. I am taking Tramadol and Lyrica and now i have started to get stinging sensations all over body, burning forearms, suprisingly my palms and hands are not affected, patches of skin that kinda feel tender, raindrop sensations... Overall its hell going on inside me. I have talked to 7 Neuros at this point and not one has even thought of SFN and i had to beg until one of them gave me a recommendation to do QST. So this is my story, and please all of you that are dealing with this a long time, i trust your opinion and maybe you can find a cause from my story? Thank you
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Old 06-19-2019, 04:21 PM #2
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kiwi33 kiwi33 is offline
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kiwi33 kiwi33 is offline
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Default

Hi Daniel

Welcome to NeuroTalk .

I am sorry to read about what you are experiencing.

I think that it is hard to say what is going on. It might be SFN; posting in the PN forum here could help you with this. You could also post in the General Health Conditions forum.

Best wishes.
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