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Old 09-22-2019, 11:48 AM   #1
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Default Hi, I'm New Here

Hello everyone. Thank you for being here!

I'm a 67 year old wife and grandma living in the western US.

I've been disabled with moderate-severe ME/CFS for 33 years. The neuro problems (vibrating, buzzing sensations in feet and legs) started the very first day I was slammed with the Epstein-Barr Virus. I never recovered from the bone-crushing fatigue and multiple other symptoms.

After complaining to literally dozens of doctors and specialists over the years, my neurologist FINALLY did nerve conduction and EMG studies and confirmed severe axonal polyneuropathy (Idiopathic). I'm now using a cane and having to check my feet everyday for injuries.

In addition to ME/CFS and PN I also have Hashimoto's thyroiditis, chronic tinnitus, vertigo, Sicca, Pulmonary Hypertension (mild), Mixed Sleep Apnea, positional orthostatic intolerance, arrhythmia and sinus tachycardia, osteoarthritis, fibromyalgia, - generalized and panic anxiety disorder, and I've probably forgotten some things. LOL!

Aside from all that, I'm quite content and happy My faith is what has kept me going all these years "My grace is sufficient for you, for power is perfected in weakness." Most gladly, therefore, I will rather boast about my weaknesses, so that the power of Christ may dwell in me." 2 Cor.12:9
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Wren (09-22-2019)
Old 09-22-2019, 05:31 PM   #2
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Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,620
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Hi Suzi-Q

Welcome to NeuroTalk .

I am sorry to read about all of the medical problems that you are dealing with.

You can use the Search command (https://www.neurotalk.org/search.php) to find threads where they have been discussed here. That information may help you.

All the best.
Knowledge is power.
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Suzi-Q (09-22-2019)
Old 09-24-2019, 05:17 PM   #3
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,104

OP: So much of what you deal with is fixable in many ways. Thyroid support etc etc I was told I had FM back in 1999 and I've questioned that dx. I know I live with osteoarthritis and work on myself all the time...doctors leave me cold. There is so much info at our fingertips and so much info here on this forum. I post info all the time here. I'm 81.

Grape Seed Extract is a miracle type antioxidant in my life and I've been taking it going on 25 yrs.

Now using a HGH homeopathic gel into 8 months and so much aging and damage is being reversed with this "gel"....many call it gold. I have a lot of info posted around here to on the "gel".
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Suzi-Q (10-07-2019)

feet, hashimotos, me/cfs, osteoarthritis, power

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