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Old 10-14-2019, 10:18 PM   #1
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Join Date: Oct 2019
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Confused Hello


I recently had two hospitalizations and have only been told I have a “high Ana marker” - with high white blood cell with high liver enzymes...

I went to the ER for the rash and shortness of breath... and many severe physical issues like severe muscle fatigue, unexpected falling/collapse, severe rash, sudden severe weakness. aMS, Lupus, and Mixed Connective Tissue Disease (?) have been tentatively mentioned...losing the ability to walk stunned me.

I’ve been disabled since 2009 for other chronic health conditions, but my current state of health has me scared and baffled.

I’m not seeking diagnosis(es) but definitely could use some support. I like to support others, too. I am a total newbie here.
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Old 10-15-2019, 02:22 AM   #2
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Hi Lash

Welcome to NeuroTalk .

From what you have said you could have some kind of autoimmune disease which has yet to be diagnosed.

Sharing your story in the Autoimmune Diseases forum here would let other members offer you support and encouragement.

All the best.
Knowledge is power.
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Old 10-15-2019, 08:00 AM   #3
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Thank you for the warm welcome, kiwi!

I agree that I very likely have an autoimmune disease.

The good news is that Medicare let me enroll early to change my Medicare health insurance that gives me more access to medical professionals. I’m going to see several doctors, including a neurologist, in November.

I am very weak this morning and have three sick puppies. Thank goodness I have DH to handle so much. He is retired so is home a lot and is very supportive. He is essentially doing 90% of the daily ... well, everything right now.
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Old 10-15-2019, 03:28 PM   #4
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,117

OP: The first thing that came to me was the falling and not walking. I went thru a mess and was in hospital/rehabs for 4.5 months with a staph infection in my knee from a injection by a doctor. The doctors who were working with me were negligent in finding the infection with the MRI. The infection did NOT show up in bloodwork and xrays. I'm home now almost two years with a walker and know the mess was all from a hip replacement in 2010. I'm 81 but otherwise healthy. I've been taking Grape Seed Extract for going on 25 yrs it's like a miracle in my life. Strong immune system etc.

Welcome and hope you can get some help here.

My sister had MS and I believe too many pharma drugs and sugar/carbs were too much for her system. Take care.
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 10-19-2019, 02:10 PM   #5
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Join Date: Sep 2006
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Hi Lash and welcome to NeuroTalk

I hope one of the Drs. you will be seeing is a Rheumatologist, at least that would be my first thought for a Specialist based on what you described.

Have you checked medication side effects for any medications you are currently taking? Medication side effects can happen at anytime and have the ability to be serious. Rashes and shortness of breath makes me wonder about an allergic reaction to something or medication side effect.

Multiple Sclerosis(MS) would not be my first thought as MS doesn't cause rashes (except due to medication side effects). There is no blood test used in diagnosing MS. All blood work is used to rule in/out other conditions.

Wishing speedy answers for your symptoms and blood work results. Take care
Dx RRMS 1984
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chronic, health, rash, severe, support

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