Hello, I’m Alexis! I’ve been diagnosed with a syrinx from C4-T9 after a 15 ft fall onto my head while rock climbing. I’m here looking for support as nobody I’ve talked to (including my family physician) seems to have any idea what Syringomyelia is or how to help me in the slightest. I have persistent left sided numbness and tingling, severe upper back pain and it’s beginning to feel as if the worst thing to do is move or get out of bed because it causes more pain. I’ve been referred to neurosurgeon with no avail.

Does anybody have any tips or tricks to ease pain from a syrinx without Chiari or even a neurosurgeon who specialize in Syringomyelia recommendation in Canada?

I feel blessed to have been able to find a support system like NeuroTalk after doing loads of research in trying to find support. Thank you for having me here 😊