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Old 05-13-2020, 12:13 AM #1
jesxes jesxes is offline
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Default Hello from Spain

Hi there,

I'm glad to join this community.

The onset of my symptoms began on March, the 27th, with both of my feet going constantly numb. Then, in just a couple of days, the numbness went up. On the left leg, the paresthesia ascended to the knee. On the right leg, it ascended much more to the hip. Then, after another 2 more days or so, I started to feel like a dull lump sensation in the right lower trunk side, just under the ribs. Together with all of this, when I go walking, I feel like standing up on rocks, walking is painful, and I note like a tight ball on my groin. Also the inner part of my buttocks have gone numb. I have recognized now that the entire half of my right lower trunk has sensorial paresthesia, when I touch it, whether on my belly or on my back, the feeling is not the same as in the left side. From two weeks ago, I have started to feel dizzy, my surroundings do not spinning or move, it is more like woozy/unsteadiness, when I climb stairs, sit down or stand up. I do not have headache, but anxiety is starting to win the battle.

I visited two traumatologists at first, but the X-ray on the column and the lumbar/sacrum MRI didn't find anything important. Then I was derived to internal medicine, but the blood test only showed some cholesterol (which I started to treat with Chromium picolinate). I went to the neurologist and she said nothing after the physical examination. The EMG on my legs is negative, so I suppose this is more related to just SFN (small fiber neuropathy). Yesterday I had MRI on dorsal/cervical spine.

I am 31 years old and I am really scared. Now, I wake up on the night from sleep almost always between 1-2 AM, and I get to sleep some more until 6-7 AM, I have been prescribed lyrica (pregabalin) and diazepam (benzodiacepine) but I do not take them. I just take some B-vitamin supplement.

Any advices or recommendations are welcome!

Greetings from Spain!
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Old 05-13-2020, 04:05 PM #2
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Quote:
Originally Posted by jesxes View Post
Hi there,

I'm glad to join this community.

The onset of my symptoms began on March, the 27th, with both of my feet going constantly numb. Then, in just a couple of days, the numbness went up. On the left leg, the paresthesia ascended to the knee. On the right leg, it ascended much more to the hip. Then, after another 2 more days or so, I started to feel like a dull lump sensation in the right lower trunk side, just under the ribs. Together with all of this, when I go walking, I feel like standing up on rocks, walking is painful, and I note like a tight ball on my groin. Also the inner part of my buttocks have gone numb. I have recognized now that the entire half of my right lower trunk has sensorial paresthesia, when I touch it, whether on my belly or on my back, the feeling is not the same as in the left side. From two weeks ago, I have started to feel dizzy, my surroundings do not spinning or move, it is more like woozy/unsteadiness, when I climb stairs, sit down or stand up. I do not have headache, but anxiety is starting to win the battle.

I visited two traumatologists at first, but the X-ray on the column and the lumbar/sacrum MRI didn't find anything important. Then I was derived to internal medicine, but the blood test only showed some cholesterol (which I started to treat with Chromium picolinate). I went to the neurologist and she said nothing after the physical examination. The EMG on my legs is negative, so I suppose this is more related to just SFN (small fiber neuropathy). Yesterday I had MRI on dorsal/cervical spine.

I am 31 years old and I am really scared. Now, I wake up on the night from sleep almost always between 1-2 AM, and I get to sleep some more until 6-7 AM, I have been prescribed lyrica (pregabalin) and diazepam (benzodiacepine) but I do not take them. I just take some B-vitamin supplement.

Any advices or recommendations are welcome!

Greetings from Spain!
Welcome, jesxes!

It sounds as if so far no doctor you've seen has been able to find out what is going on with you. I'm assuming that at least one of these doctors had blood work done and investigated whether you might have a dietary deficiency?

Could you have had an injury and forgotten about it, shortly before your symptoms came on?

I've had no medical training and am just someone with MS who takes part here. I happened to see your post and wanted to say Hello.
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Old 05-13-2020, 04:13 PM #3
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Hi jesxes

Welcome to NeuroTalk . I hope that you will find the community both knowledgeable and supportive.

I suggest that you explore the Peripheral Neuropathy forum here. It would well be of help to both you and your doctors.

Best wishes.
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Old 05-13-2020, 05:24 PM #4
jesxes jesxes is offline
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jesxes jesxes is offline
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Originally Posted by agate View Post
Welcome, jesxes!

It sounds as if so far no doctor you've seen has been able to find out what is going on with you. I'm assuming that at least one of these doctors had blood work done and investigated whether you might have a dietary deficiency?

Could you have had an injury and forgotten about it, shortly before your symptoms came on?

I've had no medical training and am just someone with MS who takes part here. I happened to see your post and wanted to say Hello.
Yes I had a full blood test but the doctor didn't find any cause, just high cholesterol (ldl) high IgA (640) and a little bit low A/G ratio (1.3), but the proteinogram was ok. I think I didn't have an injury, and I do not have back pain, but my neurologist said that my presentation seems more "mechanical" than "chemical" for her. And I got also 5 injections of B12-vitamin in 2 weeks some days later because I went to a local doctor in my village (fear of going to hospital, peak of covid here), as the first idea was sciatica, so it shouldn't be the deficiency. (maybe D-vitamin?, but I sunbath sometimes too)

I am sorry to hear you have MS, I hope you have a good quality of life, at least. Thank you for dropping by!
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Old 05-13-2020, 05:29 PM #5
jesxes jesxes is offline
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Yes I've been exploring the PN section, I almost feel fortunate that I do not have so painful feelings as fire crystals burning, flesh-eating worms, paralysis, weakness, etc.. For me it is just sensory, and pain when walking.

Thank you for your welcome!
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