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Old 06-23-2020, 01:52 PM #1
e-gised e-gised is offline
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Hi everyone,

My name is Nicky and im the father of a beautifull 3yo girl named charlie who has SCN2A. Unfortunately here in Belgium there is absolutely no research or help..

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Old 06-23-2020, 04:01 PM #2
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Hi Nicky

Welcome to NeuroTalk .

I am sorry to read about your daughter and SCN2A.

This (long and fairly technical) PDF is from Belgium. It might provide you with some people you can contact there.

http://www.epilepsy-colloquium2019.c...en_Belgium.pdf

All the best.
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Old 06-27-2020, 01:36 PM #3
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Thank u so much, ill be checking it out ! Just made an enquiery for help in philladelphia

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Old 06-28-2020, 12:27 PM #4
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Welcome Nicky.

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Old 06-28-2020, 03:27 PM #5
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Welcome! I'm sorry Belgium does not have the resources you need.
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Old 06-29-2020, 12:45 AM #6
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Welcome, e-gised!

I'm so sorry about your daughter. It must be discouraging and frustrating to find so little help with her condition.

If you browse around among the posts here, you might find some helpful information.

I hope that you will discover some useful resources.
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Old 06-29-2020, 02:11 PM #7
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Quote:
Originally Posted by agate View Post
Welcome, e-gised!



I'm so sorry about your daughter. It must be discouraging and frustrating to find so little help with her condition.



If you browse around among the posts here, you might find some helpful information.



I hope that you will discover some useful resources.
I hope so :-)

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