I have been looking for online groups just to get and give support in the neuro world.


I have spent the past year trying to get a diagnosis for my major extremity motor loss. I am now at the point where walking, standing, bathing, etc. are all limited. My current neurologist is thankfully receptive and helpful. But after labs, conduction studies, lumbar punctures, still no hits. Silver lining, we know a lot of what it’s not!

I’m not looking for a diagnosis (unless someone has one!), but just folks to connect with.

I hope everyone has a great night/day!

Hi ZebraChat

Welcome to NeuroTalk; I hope that you will find members of the community both knowledgeable and supportive .

It sounds to me that your neurologist is doing a good job.

You might find the Search option (https://www.neurotalk.org/search.php) useful in finding topics and threads which could help you.

Best wishes.

Welcome ZebraChat. Hope you find an answer.

Kitt

Hi ZebraChat and


Though the doctors have to do the diagnosing and we're not medical doctors, you'll find quite a few people here who understand the misery of having to wonder what is going wrong and not having an answer.

Back when I was in diagnosis limbo, which went on for several years, I had good days when I decided I was just having problems with stress, or maybe it was just a slipped disc. Then I had not-so-good days when I was thinking in terms of a tumor.

I hope that your problems will turn out to be due to something treatable.