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-   -   New member with rapidly worsening peripheral neuropathy (https://www.neurotalk.org/new-member-introductions/255955-rapidly-worsening-peripheral-neuropathy.html)

oldbat 09-21-2020 06:55 AM

Thanks you Atticus. Your words are very reassuring. Day 21 and I have noticed that the dizzy spells, which seem to coincide with low blood pressure, are improving. My most concerning symptom right now is muscle wasting in the legs and arms, in spite the new exercise program I started back in August when this whole ordeal started. Did you experience any muscle wasting?

Atticus 09-21-2020 03:54 PM

Quote:

Originally Posted by oldbat (Post 1289208)
Thanks you Atticus. Your words are very reassuring. Day 21 and I have noticed that the dizzy spells, which seem to coincide with low blood pressure, are improving. My most concerning symptom right now is muscle wasting in the legs and arms, in spite the new exercise program I started back in August when this whole ordeal started. Did you experience any muscle wasting?

Hi Bat,

I switched to a whole food plant based diet that is very nutrient dense but not calorie dense so lost a lot of fat rather than experience muscle wastage. I take Creatine and lift weights regularly. Creatine helps boost muscle growth and has been shown to help regenerate peripheral nerves too. Weight training and stretching are for me keys to recovery.

Effect of Creatine on Rat Sciatic Nerve Injury: A Comparative Ultrastructural Study - PubMed

Hope this helps

Atty.

oldbat 10-06-2020 11:17 AM

Sjogren's syndrome
 
Just received results back from a blood test for ssa, ssb. Sjogrens antibodies. Tests came back positive. Can neurological damage from this disease be stopped?

oldbat 10-07-2020 06:36 PM

Quote:

Originally Posted by oldbat (Post 1289552)
Just received results back from a blood test for ssa, ssb. Sjogrens antibodies. Tests came back positive. Can neurological damage from this disease be stopped?

False alarm. The results were negative according to my rheumatologist. Still no diagnosis, although I didn't want this one (as if we can pick and choose!)

Mary Fitzpatrick 11-28-2020 06:50 AM

Hi, old bat! Like you I have just started feeling the symptoms of neuropathy, numbness, pain in feet, weakness, all, I believe the result of too much alcohol; since you haven't posted for a while I am wondering if you have noticed much improvement, especially since you have stopped drinking?

Kitt 12-01-2020 06:43 PM

Welcome Mary Fitzpatrick. :Wave-Hello:

oldbat 12-16-2020 06:37 AM

Hi Mary,
Unfortunately my symptoms have been steadily worsening, although I can still get around OK. It's been about 3 1/2 months without alcohol and I have no desire for it anymore, particularly considering the damage. I had one horrid doctor recently who berated me for drinking and told me that its only going to get worse. Some people have been lucky and able to reverse their neuropathy, but perhaps my alcohol consumption went on too long. Still hoping and praying for a miracle.

caroline2 12-16-2020 01:37 PM

Oldbat: Beside all the other THINGS that can cause Neuropathy, just hearing Dr. Wallach on the radio the other night, he says, foot neuropathy especially can be caused by degenerative discs in the back... I have lost about 3 inches from my 5' 5" body. With aging, we all lose disc space and this he says causes nerve damage down the legs into the feet. Stretch the body, I do every morning before I start my day, and waiting for my new order of Inosine which I've posted about that helps my issues... which came on from hip replacement in 2010......

Atticus 12-18-2020 05:05 AM

Quote:

Originally Posted by oldbat (Post 1291010)
Hi Mary,
Unfortunately my symptoms have been steadily worsening, although I can still get around OK. It's been about 3 1/2 months without alcohol and I have no desire for it anymore, particularly considering the damage. I had one horrid doctor recently who berated me for drinking and told me that its only going to get worse. Some people have been lucky and able to reverse their neuropathy, but perhaps my alcohol consumption went on too long. Still hoping and praying for a miracle.

Hey Bat,

The first 3 months are the hardest in respect of coming to terms with chronic pain and a life without alcohol. You have endured those days, you have got through them and they will never be as bad again. I remember sitting at home trying to watch TV at the beginning of UK lockdown at the end of March ( my fist symptoms were mid January) and I had hurt my back at the same time and everything hurt, I couldn't even find a comfortable place to sit. I remember thinking that if this gets worse I won't be able to continue.

Luckily for me, Lockdown gave me 3 months of rest and recuperation. And I slowly recovered. That is the point, recovery and nerve regeneration are slow. It requires patience. You are doing the right thing, things will get better. I spoke to some guys on the thread Alcohol Neuropathy Part 2 and they said it took about a year to fully feel better, but their symptoms were much worse than ours. One guy was in a wheelchair for several months. It took me maybe 5 months to recover. I actually became over confident and thought I was cured and drank, experienced symptoms and had to start again. Over the months I changed my whole diet (Vegan) and lifestyle and focused on getting well. I think it's very important to try and do everything you can to allow your body to heal itself. Develop a wellness plan. I'm at the position now where I am pretty much symptom free apart from say awareness of my toes from time to time.

You don't need a miracle. You just need time and a bit of effort.
Here are some supplements you may want to consider ...

NERVE HEALING SUPPLEMENTS:

Vitamin B1; thiamine but best to take Benfotiamine the fat soluble form as you can store it in your liver. B vitamins are water soluble so pass out of our bodies .This together with
Vitamin B12 are the most important supplements. I take 1000ug of methylcobalamin a day.

A quality broad spectrum multi B Vitamin. Don't overdo B6
B Complex 50 ~ 100 mg
Vitamin D3 1000 ~ 5000 IU
Magnesium 400 ~ 600 mg
Omega - 3 (EPA DHA) from Algae Oil or Fish Oil 1000 ~ 2000 mg a day
Eat milled flax seed and chia seed for additional omega 3.
Turmeric 500 mg
Alpha lipoic acid 600 ~ 1200 mg
CoQ-10 100mg

I wish you well,

Atty

Jomar 12-18-2020 02:13 PM

It isn't mentioned often, but MSM might be worth considering also..
I discovered it when I had severe RSI, and have used it for 30 yrs on & off..
NERVE HEALING SUPPLEMENTS MSM - Google Search

Top 8 Health Benefits of MSM Supplements
MSM Herbal Supplements Side Effects, Benefits, Uses & Dosage


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