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02-22-2022, 04:02 PM | #1 | ||
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Scared49: You seem to be taking a lot of recommended supports but I don't see Inosine or Spingohlin in your list. I have talked about these 2 and how they both helped my issues and Inosine for sure. And as I mentioned to another newbie who mentioned side effects from the "jabs" for covid, I seconded those thoughts. I'd wager most here have done the jabs, and I have not. |
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02-23-2022, 12:45 PM | #2 | ||
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i did not know about sphingolin or inosine. please tell me know how many mg to take daily. what do you mean by “jabs” for covid? thank you🙏🏻 |
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02-23-2022, 03:36 AM | #3 | ||
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First of all I wanted to say that Mrs D was this website's greatest contributer, a genuine researcher who attended conferences and read widely. My knowledge is far narrower and based on personal experience mostly. I hear your pain, I feel your anxiety. I understand what you are going through is horrible. It's awful. It seems to me that it's the anxiety that you need to deal with most. Alcohol is a great relaxant. It acts as a sedative and can take your mind off life's problems. Alcohol increases the activity of the neurotransmitter/modulator dopamine in the brain that makes us feel good. It's those feelings of eurphoria that makes us want to reach for another drink. I dare say your brain/body are missing those feelings. I would suggest that if you can learn to meditate and ideally join a meditation class you can generate relaxation and healthy feelgood dopamine. It will allow your body to heal that much quicker. Our nervous system comprises a sympathetic nervous system ( fight or flight) and a parasympathetic nervous system ( rest and digest). In times of stress the sympathetic nervous system dominates. The body is a great healer and will heal more rapidly in a relaxed state. Learn to relax. Join a meditation class. Discuss your anxiety and symptoms with friends/family. Don't keep your feelings secret. Let them help you. Walk everyday. Get outside and experience morning sunlight. Breathe. It's important not to catastrophize. My own symptoms peaked during lockdown. Although I went through the same terrors you describe, I also felt a sense of peace because I was able to give up my responsibilities and really rest. It was sunny and I used to fall asleep outside regularly listening to YouTube relaxatation videos. I slept a lot. I entered a short play competition and won. They finally performed it, after several cancellations, earlier this year. It was genuinely terrible! But the point is I was able to focus on something and that sense of achievement of task completion helped me. ( Again feel good Dopamine release) Do you have a hobby you can really focus on? In my experience and in others I have read of, the usual pattern of recovery is that the symptoms get worse before they get better. I believe the body starts regenerating demyelinated nerve fibres typically a month or so after cessation. B12 helps with this. It's a slow process so be patient. I would add Magnesium Threonate to your supplements. Take it in the evenings and it will help you sleep and ease anxiety. You don't say if you have sought medical help. Are you self diagnosed? Best wishes Atty. |
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02-23-2022, 01:31 PM | #4 | ||
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Junior Member
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i was not sure if my post would reach you and was so happy to see your reply. i forgot to mention i am taking magnesium 200mg, but not magnesium threonate. is there a difference? i will get that today if there is a difference, and please let me know how many mg to get. also, do you know much about sphingolin and inosine as mentioned by caroline2 above? i am planning on getting those today. i have been meditating and going for hikes for 3 months every other day since ceasing alcohol, but my neuropathy symptoms did not start till about a month ago (8 weeks after no alcohol). i will continue my daily hikes/walks and meditation as it does distract me. when i do walk/hike, my tingling in my feet and hands are quite noticeable and so it reminds me that something is not right. i am seeing a neurologist and see her again next week to go over my labs. i received my labs yesterday from labcorp and made the stupid mistake of researching my abnormal results. my immunoglobulin A is high (she was testing me for celiac disease), which google says could be cirrhosis😢 so got scared. but all my labs pertaining to my liver is all within normal range. my ast, alt, alp, ggt, albumin, total protein, globulin, bilirubin, albumin/globulin ratio, bun/creatinine ratio all within normal range. my ct, ultrasound was all normal. my fibroscan was 9.8 cap 249. my gastroenterologist said it was mild scarring and no sign of fatty liver and is reversible given time. he wants to do another fibroscan in a year. i am eating quite healthy, exercising, cut all bad carbs/sugar due to my high triglycerides and of course, no alcohol for 3 months now. my b6 was also elevated, but said could be the cause of taking vitamins 24 hours prior to testing. my b12 was within range at 880. my thyroid came back abnormal. don’t know yet if it’s hypothyroid or hyperthyroid. did not know how to interpret the result. all other tests were normal that she tested for. i know i am doing all the right things by making healthy choices, but the tingling, pins and needles, and sharp stabbing pain reminds me daily. i really appreciate your and everyone’s replies/suggestions and really glad to have found this forum. by the way, congrats on winning the short play competition you entered! way to go! |
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09-21-2020, 06:55 AM | #5 | ||
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Thanks you Atticus. Your words are very reassuring. Day 21 and I have noticed that the dizzy spells, which seem to coincide with low blood pressure, are improving. My most concerning symptom right now is muscle wasting in the legs and arms, in spite the new exercise program I started back in August when this whole ordeal started. Did you experience any muscle wasting?
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09-21-2020, 03:54 PM | #6 | ||
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I switched to a whole food plant based diet that is very nutrient dense but not calorie dense so lost a lot of fat rather than experience muscle wastage. I take Creatine and lift weights regularly. Creatine helps boost muscle growth and has been shown to help regenerate peripheral nerves too. Weight training and stretching are for me keys to recovery. Effect of Creatine on Rat Sciatic Nerve Injury: A Comparative Ultrastructural Study - PubMed Hope this helps Atty. |
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"Thanks for this!" says: | oldbat (09-21-2020) |
10-06-2020, 11:17 AM | #7 | ||
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Junior Member
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Just received results back from a blood test for ssa, ssb. Sjogrens antibodies. Tests came back positive. Can neurological damage from this disease be stopped?
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"Thanks for this!" says: | Kitt (10-06-2020) |
10-07-2020, 06:36 PM | #8 | ||
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Junior Member
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False alarm. The results were negative according to my rheumatologist. Still no diagnosis, although I didn't want this one (as if we can pick and choose!)
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"Thanks for this!" says: | Atticus (10-14-2020) |
02-28-2021, 12:56 PM | #9 | ||
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New Member
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I can relate to your situation but I'm pretty sure my neuropathy is caused by nerve damage in several locations from my neck to lower back. My toes on both feet are numb most of the time and if not I get a tingling response and the Dr's just say it's nerve damage but don't offer any treatment. I've had 3 neck surgeries and 2 back surgeries over the last 20 or so years so arthritis has set in just to add more pain. Now I have severe pain going down both legs and the diagnosis is severe spinal stenosis. I had an outpatient procedure done that actually gave me relief for almost 6 months but the pain is now back and worse than it ever has been. I'm so discouraged and depressed because it is affecting every single aspect of my life. I'm 64 and can barely walk so I know what you're going through. I'm searching for answers every where I can because I cannot live like this. I also enjoy my cocktails in the evening and I know that does not help inflammation but it relaxes me and takes my mind off my issues if only for a brief time. I hope you find something that helps you...I will keep you in my thoughts and send positive healing vibes your way!
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"Thanks for this!" says: | oldbat (03-02-2021) |
02-28-2021, 04:43 PM | #10 | |||
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Grand Magnate
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Hi Mary Fitzpatrick
Welcome to the community . I hope that you will get at lot of support here. You can use the Search option here (https://www.neurotalk.org/search.php). That will let you find topics and threads which may help you. Best wishes.
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Knowledge is power. |
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