NeuroTalk Support Groups - New member with rapidly worsening peripheral neuropathy

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- - New member with rapidly worsening peripheral neuropathy (https://www.neurotalk.org/new-member-introductions/255955-rapidly-worsening-peripheral-neuropathy.html)

Quote:

Originally Posted by SailinJane (Post 1292339)

I can relate to your situation but I'm pretty sure my neuropathy is caused by nerve damage in several locations from my neck to lower back. My toes on both feet are numb most of the time and if not I get a tingling response and the Dr's just say it's nerve damage but don't offer any treatment. I've had 3 neck surgeries and 2 back surgeries over the last 20 or so years so arthritis has set in just to add more pain. Now I have severe pain going down both legs and the diagnosis is severe spinal stenosis. I had an outpatient procedure done that actually gave me relief for almost 6 months but the pain is now back and worse than it ever has been. I'm so discouraged and depressed because it is affecting every single aspect of my life. I'm 64 and can barely walk so I know what you're going through. I'm searching for answers every where I can because I cannot live like this. I also enjoy my cocktails in the evening and I know that does not help inflammation but it relaxes me and takes my mind off my issues if only for a brief time. I hope you find something that helps you...I will keep you in my thoughts and send positive healing vibes your way!

Thank you Sailin Jane. Positive healing vibes back at you! Have you talked to your doctor about physical therapy? If your up to it, maybe some gentle stretching exercises may help.

Quote:

Originally Posted by oldbat (Post 1292382)

Well its been 6 months since I discontinued alcohol and the numbness in the feet and hands has improved. Hooray! However a few symptoms did not improve, such as the slower movement of the fingers in my right hand. Went back to the neurologist last week and he had me walk down the hall and observed that my right arm wasn't swinging the same amount as the left. He also noted that my handwriting was small and the letters were cramped. He diagnosed me with probable Parkinsons and put me on carbidopa/levodopa (25/100 twice daily).

The good news is that the alcohol induced PN did improve and is now much less noticeable. Wish there was something I could do about the Parkinsons.

Hey Bat,

Great to hear that your PN symptoms have decreased.

In terms of your (tentative?) Parkinson's diagnosis, have a look at the threads written by Parkinson's here-now for simple self help measures. I'm sure he would answer any of your questions too.

Take care

Atty.

Quote:

Originally Posted by oldbat (Post 1292382)

https://www.neurotalk.org/parkinson-s-disease/
Here is our PD forum link .

Hey thanks Atty and Jomar. Yeah that diagnosis was a real kick in the teeth. I was hoping that the issues with my arm and fingers were somehow related to the alcohol PN and would eventually clear. The good news is that the symptoms are mild at this time. In fact, the side effects from the medication seem to be worse than the symptoms. Tempted to wean myself off of it.

Talk to your PD dr about meds & sid effects... maybe adjust, put the meds on hold for awhile or look into alternatives..
You can search the PD forum for side effects, or the med name and it should bring up past posts with info..
Posting a new thread there might bring some members back to talk with..

Hang in there to Oldbat. I am 38 and is is bad shape because of my alcohol abuse. i drank on the heavy side for 5 years and now have muscle wasting and weakness all over my body and is very fatigued and weak now so bummer. Does anyone have something simiar to me or know someone with advanced nerve damage from drinking? it would be nice to form a support group. But anyways Oldbat just keep away from the drinking and maybe take some b vitamins and try to stay positive.

Welcome Tony3838. :welcome_sign:

Welcome, Tony3838!:):Wave-Hello:

Quote:

Originally Posted by Tony3838 (Post 1295807)

Hey Tony,

I have alcohol induced PN and if I can help at all please let me know.

Best wishes,

Atty

hi atticus,

i have been reading and reading on this forum about alcohol neuropathy and keep coming back to your comments and your knowledge about it. i’ve been scared to write anything, but today, the tingling and pins and needles are so distracting, i decided to reach out.
my symptoms started about a month ago. tingling in both feet and hands, occasional numbness on bottom of feet, toes, and fingers, sharp electrical like stabbing sometimes when i walk on bottom of foot, only lasts a quick second, feels like my toes are crammed in shoes like there’s something there, feels like i’m stepping on a rock or pebble when nothing is there. i can walk no problem, my hands and fingers are mobile, i have strength in legs, feet, hands and arms. but the pins and needles feeling throughout my body and the constant tingling in feet, legs, arms and hands is scaring me. i went to the doctor 3 months ago for a routine blood work, my triglycerides were pretty high at close to 400 ( i am small and weigh about 42kg) so the doctor advised me to cut bad carbs. which meant no white bread, pasta, sugar, alcohol, etc. my last drink was 11/25/21 (thanksgiving day). i thought i was a social drinker but i have read otherwise. i have had at least 2 glasses of wine every night for the last decade. on weekends and parties, i would have more… maybe 3 glasses and sometimes a shot of something.
i think it was way over the daily or weekly limit especially for my small build. my symptoms of neuropathy did not start till about a month ago. never had any symptoms except for my 2 small toes going numb maybe once a month or so. did not think anything about it since feeling would come back after half hour or so. my full on neuropathy symptoms started roughly 2 months after ceasing alcohol. and it’s rapidly getting worse. it’s like i’m having a new symptom that appear daily. sometimes i feel great, and have no symptoms for several hours, then it comes back and it reminds me. i am not debilitated, i can walk and do daily things, but the feelings of pins and needles, numbness, and sharp stabbing like pain is not normal.

i have taken your and mrs d’s advice and started the following with some extras i have already been taking for years…

womens multi vitamin
stress b complex
methylb12 1000mcg (started yesterday)
benfotiamine 150mg with 300mg ala (started yesterday)
vitamin c 1000mg
fish oil 1000mg
probiotic
turmeric 1000mg
milk thistle 500mg
digestive enzymes
vitamin e 400iu
vitamin d3 2000iu,

my question is, do the symptoms really get worse before it gets better? why didn’t i have any of these symptoms post ceasing alcohol?
i am scared and really need to know it will get better. i have read you saying distract by reading and watching tv, i have been doing that and it really helps. but sometimes when the tingling is constant, i can’t help worrying and my anxiety kicks in. thank you very much for reading. you and mrs d have been tremendous help.

sacred49