thank you caroline,
will research to see if i should take them.
right, amazon is a bit scary to buy supplements. don’t know exactly where they are manufactured and coming from.

thank you lara,
will read up on sphingolin to see if i should start taking it.
appreciate your advice.

thank you agate for your suggestions. you’re right, i will look into a nutritionist to see about continuing all i’ve been taking. never thought of that. it did scare me a bit when my b6 was quite high. appreciate it!

Great to see an active thread. So often I have taken the time to research and post answers to see no replies. It would be good to get feedback and updates from the people who start these threads.

Scared,

Great to see you have made positive changes in your life. You are well on the way to recovery.

I take Magnesium Threonate because it helps with sleep. It is also able to cross the blood brain barrier and is beneficial for brain health. See references below. I take 200 to 300mg a day. However in terms of PN probably has no advantage.

Magnesium L-threonate prevents and restores memory deficits associated with neuropathic pain by inhibition of TNF-α - PubMed

Magnesium threonate: Benefits, side effects, dosage, and more

Thinking of Agate's wise words, and as you probably know, excessive B6 is known as a cause of PN.

[How much vitamin B6 is toxic?] - PubMed

I heard David Sinclair on a podcast recently saying that pulsing supplements may be more effective means of taking them, that is taking supplements every other day. I certainly think a rest from them is a good idea from time to time.

You have to remember Scared that there will be people reading your posts that would dream of having your level of symptoms. As disconcerting as they are, here's a thought, what if you thought of them as trivial? In my experience I just became bored with noticing tingling and shooting pain. They are not life changing. As soon as you realise that, you are in control and you can get on with the rest of your life. A simple NLP technique is to replace what you have in your mind when you notice a shooting pain with an image of something funny. Confuse the pain.

If there is an upside to aclohol induced PN it is the joy of getting better. If you remove alcohol from your life, this will inevitably happen. You take away the cause of PN eventually your body will heal. You have to be patient. You're only 3 months or so in. You will be okay. You will get through this.

Best wishes,

Atty

thank you so much atty,
your posts of staying positive with distractions has helped me quite a bit. i need to be in control of my mind and must not allow the issues to control me. i panicked and went overboard taking new supplements trying to fix the discomfort, but in actuality may be an overload of vitamins and minerals i don’t need. what’s strange is all the b6 i’ve been taking combined does not exceed 50mg a day but was high in my labs. so maybe i am getting enough from what i’ve been eating? i have been eating very well. keeping things in moderation is my new goal and see where it takes me. onward and upward!
thank you so much.

I don't drink at all, but anyone can get peripheral neuropathy. It happened to me after a revision surgery on my right foot where the surgeon didn't use a nerve block. As a result, I have numbness and pain in toes and metatarsals which travels up leg (sural nerve). It's ruined any walking, and now is affecting the other foot. Waking up with burning pain in heel, and big toe infrequently.
I've been to a pain specialist who prescribed pregabalin, and morphine patches, but these only mask the symptoms - they don't CURE it. So WHAT does?

Welcome, Sooze56!

You don't mention how long ago you had the revision surgery. I understand that healing after such surgery can take up to a year.

Though I have no answer to your question, I hope that you have found a good doctor who can come up with some helpful suggestions. I myself would favor a doctor who takes a conservative approach--recommending solutions other than more surgery, for instance.

I have come across the term "Coasting" with respect to Neuropathy.

This describes the experience of symptom progression before gradual improvement after the cessation of alcohol. This is known as coasting and is encountered in other toxic neuropathies.


Alcoholic neuropathy: possible mechanisms and future treatment possibilities - PMC.

This paper uses the term in the opening paragraph and offers excellent insights in supplementation.

Welcome Sooze56.

The numbness is making typing difficult as opposed to lack of coordination or something