New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 02-23-2022, 10:21 PM #51
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
Default

Quote:
Originally Posted by caroline2 View Post
Jabs as many call them are the shots for this covid.

The directions are on the bottles of Inosine and Sphingolin, and Pure Formulas carry them both. Do some research on them

And probably Amazon as well, but I try not to shop Amazon.
thank you caroline,
will research to see if i should take them.
right, amazon is a bit scary to buy supplements. don’t know exactly where they are manufactured and coming from.
scared49 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-23-2022, 10:25 PM #52
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
Default

Quote:
Originally Posted by Lara View Post
Hi scared.
Don't be scared.

I just wanted to extend a "welcome" and also a suggestion that you can use the forum search feature for all the past threads and posts regarding Sphingolin in particular, before you buy it. I wouldn't take it for my peripheral neuropathy, but I know a few here have tried it.

You have probably found it already, but here is the link below to the forum search feature...
thank you lara,
will read up on sphingolin to see if i should start taking it.
appreciate your advice.
scared49 is offline   Reply With QuoteReply With Quote
Old 02-23-2022, 10:29 PM #53
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
Default

Quote:
Originally Posted by agate View Post
Welcome, scared39!

You're taking quite a few supplements. I hope you've studied up on just what they do and don't do, and how they might interact with one another.

I am very hesitant to take any medicine or supplement, especially for any neurological problem. And the older I get, the more cautious I am. Sometimes doing nothing and even cutting out one or two drugs or supplements can solve a lot of problems.

Also, you might want to look into your diet. There might be a nutrient you need, or a nutrient you're getting too much of. A dietitian or nutritionist can be useful.

Congratulations on cutting out the alcohol. That's not an easy battle but it sounds as if you've been winning it.
thank you agate for your suggestions. you’re right, i will look into a nutritionist to see about continuing all i’ve been taking. never thought of that. it did scare me a bit when my b6 was quite high. appreciate it!
scared49 is offline   Reply With QuoteReply With Quote
Old 02-24-2022, 03:20 AM #54
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Default

Great to see an active thread. So often I have taken the time to research and post answers to see no replies. It would be good to get feedback and updates from the people who start these threads.

Scared,

Great to see you have made positive changes in your life. You are well on the way to recovery.

I take Magnesium Threonate because it helps with sleep. It is also able to cross the blood brain barrier and is beneficial for brain health. See references below. I take 200 to 300mg a day. However in terms of PN probably has no advantage.

Magnesium L-threonate prevents and restores memory deficits associated with neuropathic pain by inhibition of TNF-α - PubMed

Magnesium threonate: Benefits, side effects, dosage, and more

Thinking of Agate's wise words, and as you probably know, excessive B6 is known as a cause of PN.

[How much vitamin B6 is toxic?] - PubMed

I heard David Sinclair on a podcast recently saying that pulsing supplements may be more effective means of taking them, that is taking supplements every other day. I certainly think a rest from them is a good idea from time to time.

You have to remember Scared that there will be people reading your posts that would dream of having your level of symptoms. As disconcerting as they are, here's a thought, what if you thought of them as trivial? In my experience I just became bored with noticing tingling and shooting pain. They are not life changing. As soon as you realise that, you are in control and you can get on with the rest of your life. A simple NLP technique is to replace what you have in your mind when you notice a shooting pain with an image of something funny. Confuse the pain.

If there is an upside to aclohol induced PN it is the joy of getting better. If you remove alcohol from your life, this will inevitably happen. You take away the cause of PN eventually your body will heal. You have to be patient. You're only 3 months or so in. You will be okay. You will get through this.

Best wishes,

Atty
Atticus is offline   Reply With QuoteReply With Quote
Old 02-24-2022, 11:29 AM #55
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
scared49 scared49 is offline
Junior Member
 
Join Date: Feb 2022
Location: Montgomery, AL
Posts: 9
2 yr Member
Default

thank you so much atty,
your posts of staying positive with distractions has helped me quite a bit. i need to be in control of my mind and must not allow the issues to control me. i panicked and went overboard taking new supplements trying to fix the discomfort, but in actuality may be an overload of vitamins and minerals i don’t need. what’s strange is all the b6 i’ve been taking combined does not exceed 50mg a day but was high in my labs. so maybe i am getting enough from what i’ve been eating? i have been eating very well. keeping things in moderation is my new goal and see where it takes me. onward and upward!
thank you so much.
scared49 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (02-26-2022)
Old 03-06-2022, 06:42 AM #56
Sooze56 Sooze56 is offline
Newly Joined
 
Join Date: Mar 2022
Location: Hampshire
Posts: 1
2 yr Member
Sooze56 Sooze56 is offline
Newly Joined
 
Join Date: Mar 2022
Location: Hampshire
Posts: 1
2 yr Member
Default

I don't drink at all, but anyone can get peripheral neuropathy. It happened to me after a revision surgery on my right foot where the surgeon didn't use a nerve block. As a result, I have numbness and pain in toes and metatarsals which travels up leg (sural nerve). It's ruined any walking, and now is affecting the other foot. Waking up with burning pain in heel, and big toe infrequently.
I've been to a pain specialist who prescribed pregabalin, and morphine patches, but these only mask the symptoms - they don't CURE it. So WHAT does?
Sooze56 is offline   Reply With QuoteReply With Quote
Old 03-06-2022, 09:48 PM #57
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
Default

Welcome, Sooze56!

You don't mention how long ago you had the revision surgery. I understand that healing after such surgery can take up to a year.

Though I have no answer to your question, I hope that you have found a good doctor who can come up with some helpful suggestions. I myself would favor a doctor who takes a conservative approach--recommending solutions other than more surgery, for instance.
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
agate is offline   Reply With QuoteReply With Quote
Old 03-29-2022, 04:22 AM #58
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Atticus Atticus is offline
Member
 
Join Date: Feb 2020
Location: UK
Posts: 269
3 yr Member
Default

I have come across the term "Coasting" with respect to Neuropathy.

This describes the experience of symptom progression before gradual improvement after the cessation of alcohol. This is known as coasting and is encountered in other toxic neuropathies.


Alcoholic neuropathy: possible mechanisms and future treatment possibilities - PMC.

This paper uses the term in the opening paragraph and offers excellent insights in supplementation.
Atticus is offline   Reply With QuoteReply With Quote
Old 03-29-2022, 08:59 AM #59
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,438
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,438
15 yr Member
Default

Welcome Sooze56.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 04-08-2024, 09:16 PM #60
Matt Grantham Matt Grantham is offline
Junior Member
 
Join Date: Apr 2024
Posts: 7
Matt Grantham Matt Grantham is offline
Junior Member
 
Join Date: Apr 2024
Posts: 7
Default

The numbness is making typing difficult as opposed to lack of coordination or something
Matt Grantham is offline   Reply With QuoteReply With Quote
Reply

Tags
blood, heels, normal, numbness, week


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
new member sensory peripheral neuropathy flyfishobie Peripheral Neuropathy 14 04-21-2014 11:14 PM
New Member with peripheral neuropathy marcusdolby New Member Introductions 11 09-01-2013 05:58 PM
new member- peripheral neuropathy- B12 question nanmiya New Member Introductions 16 12-12-2010 01:36 AM
new member sensory peripheral neuropathy flyfishobie New Member Introductions 4 11-01-2009 01:23 PM
New member with peripheral neuropathy mike2007 New Member Introductions 3 09-14-2007 01:32 AM


All times are GMT -5. The time now is 06:20 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.