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New member with rapidly worsening peripheral neuropathy

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Old 09-21-2020, 06:55 AM #1
oldbat oldbat is offline
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Thanks you Atticus. Your words are very reassuring. Day 21 and I have noticed that the dizzy spells, which seem to coincide with low blood pressure, are improving. My most concerning symptom right now is muscle wasting in the legs and arms, in spite the new exercise program I started back in August when this whole ordeal started. Did you experience any muscle wasting?
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Old 09-21-2020, 03:54 PM #2
Atticus Atticus is offline
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Quote:
Originally Posted by oldbat View Post
Thanks you Atticus. Your words are very reassuring. Day 21 and I have noticed that the dizzy spells, which seem to coincide with low blood pressure, are improving. My most concerning symptom right now is muscle wasting in the legs and arms, in spite the new exercise program I started back in August when this whole ordeal started. Did you experience any muscle wasting?
Hi Bat,

I switched to a whole food plant based diet that is very nutrient dense but not calorie dense so lost a lot of fat rather than experience muscle wastage. I take Creatine and lift weights regularly. Creatine helps boost muscle growth and has been shown to help regenerate peripheral nerves too. Weight training and stretching are for me keys to recovery.

Effect of Creatine on Rat Sciatic Nerve Injury: A Comparative Ultrastructural Study - PubMed

Hope this helps

Atty.
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oldbat (09-21-2020)
Old 10-06-2020, 11:17 AM #3
oldbat oldbat is offline
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Default Sjogren's syndrome
Just received results back from a blood test for ssa, ssb. Sjogrens antibodies. Tests came back positive. Can neurological damage from this disease be stopped?
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Kitt (10-06-2020)
Old 10-07-2020, 06:36 PM #4
oldbat oldbat is offline
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Originally Posted by oldbat View Post
Just received results back from a blood test for ssa, ssb. Sjogrens antibodies. Tests came back positive. Can neurological damage from this disease be stopped?
False alarm. The results were negative according to my rheumatologist. Still no diagnosis, although I didn't want this one (as if we can pick and choose!)
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Atticus (10-14-2020)
Old 11-28-2020, 06:50 AM #5
Mary Fitzpatrick Mary Fitzpatrick is offline
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Mary Fitzpatrick Mary Fitzpatrick is offline
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Hi, old bat! Like you I have just started feeling the symptoms of neuropathy, numbness, pain in feet, weakness, all, I believe the result of too much alcohol; since you haven't posted for a while I am wondering if you have noticed much improvement, especially since you have stopped drinking?
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Old 12-01-2020, 06:43 PM #6
Kitt Kitt is offline
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Welcome Mary Fitzpatrick.
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"It is what it is."
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Old 12-16-2020, 06:37 AM #7
oldbat oldbat is offline
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Hi Mary,
Unfortunately my symptoms have been steadily worsening, although I can still get around OK. It's been about 3 1/2 months without alcohol and I have no desire for it anymore, particularly considering the damage. I had one horrid doctor recently who berated me for drinking and told me that its only going to get worse. Some people have been lucky and able to reverse their neuropathy, but perhaps my alcohol consumption went on too long. Still hoping and praying for a miracle.
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