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Old 02-22-2022, 04:02 PM #1
caroline2 caroline2 is offline
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Originally Posted by scared49 View Post
hi atticus,

i have been reading and reading on this forum about alcohol neuropathy and keep coming back to your comments and your knowledge about it. i’ve been scared to write anything, but today, the tingling and pins and needles are so distracting, i decided to reach out.
my symptoms started about a month ago. tingling in both feet and hands, occasional numbness on bottom of feet, toes, and fingers, sharp electrical like stabbing sometimes when i walk on bottom of foot, only lasts a quick second, feels like my toes are crammed in shoes like there’s something there, feels like i’m stepping on a rock or pebble when nothing is there. i can walk no problem, my hands and fingers are mobile, i have strength in legs, feet, hands and arms. but the pins and needles feeling throughout my body and the constant tingling in feet, legs, arms and hands is scaring me. i went to the doctor 3 months ago for a routine blood work, my triglycerides were pretty high at close to 400 ( i am small and weigh about 42kg) so the doctor advised me to cut bad carbs. which meant no white bread, pasta, sugar, alcohol, etc. my last drink was 11/25/21 (thanksgiving day). i thought i was a social drinker but i have read otherwise. i have had at least 2 glasses of wine every night for the last decade. on weekends and parties, i would have more… maybe 3 glasses and sometimes a shot of something.
i think it was way over the daily or weekly limit especially for my small build. my symptoms of neuropathy did not start till about a month ago. never had any symptoms except for my 2 small toes going numb maybe once a month or so. did not think anything about it since feeling would come back after half hour or so. my full on neuropathy symptoms started roughly 2 months after ceasing alcohol. and it’s rapidly getting worse. it’s like i’m having a new symptom that appear daily. sometimes i feel great, and have no symptoms for several hours, then it comes back and it reminds me. i am not debilitated, i can walk and do daily things, but the feelings of pins and needles, numbness, and sharp stabbing like pain is not normal.

i have taken your and mrs d’s advice and started the following with some extras i have already been taking for years…

womens multi vitamin
stress b complex
methylb12 1000mcg (started yesterday)
benfotiamine 150mg with 300mg ala (started yesterday)
vitamin c 1000mg
fish oil 1000mg
probiotic
turmeric 1000mg
milk thistle 500mg
digestive enzymes
vitamin e 400iu
vitamin d3 2000iu,

my question is, do the symptoms really get worse before it gets better? why didn’t i have any of these symptoms post ceasing alcohol?
i am scared and really need to know it will get better. i have read you saying distract by reading and watching tv, i have been doing that and it really helps. but sometimes when the tingling is constant, i can’t help worrying and my anxiety kicks in. thank you very much for reading. you and mrs d have been tremendous help.

sacred49

Scared49: You seem to be taking a lot of recommended supports but I don't see Inosine or Spingohlin in your list. I have talked about these 2 and how they both helped my issues and Inosine for sure.

And as I mentioned to another newbie who mentioned side effects from the "jabs" for covid, I seconded those thoughts. I'd wager most here have done the jabs, and I have not.
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Old 02-23-2022, 12:45 PM #2
scared49 scared49 is offline
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Originally Posted by caroline2 View Post
Scared49: You seem to be taking a lot of recommended supports but I don't see Inosine or Spingohlin in your list. I have talked about these 2 and how they both helped my issues and Inosine for sure.

And as I mentioned to another newbie who mentioned side effects from the "jabs" for covid, I seconded those thoughts. I'd wager most here have done the jabs, and I have not.
thank you so much caroline2,
i did not know about sphingolin or inosine. please tell me know how many mg to take daily. what do you mean by “jabs” for covid? thank you🙏🏻
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Old 02-23-2022, 02:18 PM #3
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Jabs as many call them are the shots for this covid.

The directions are on the bottles of Inosine and Sphingolin, and Pure Formulas carry them both. Do some research on them

And probably Amazon as well, but I try not to shop Amazon.
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Old 02-23-2022, 04:47 PM #4
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Originally Posted by caroline2 View Post
Jabs as many call them are the shots for this covid.

The directions are on the bottles of Inosine and Sphingolin, and Pure Formulas carry them both. Do some research on them

And probably Amazon as well, but I try not to shop Amazon.
oh gotcha, ok, thought the “jabs” that you mentioned were symptoms of getting vaccinated. i got 2 pfizer vaccines and also boostered so thought maybe it was the side effects from that so got scared.
i will research how many mg of sphingolin and ionine to take and go from there.
really appreciate you taking the time to reply. thank you🙏🏻
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Old 02-23-2022, 07:53 PM #5
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i will research how many mg of sphingolin and ionine to take and go from there.
really appreciate you taking the time to reply.
Hi scared.
Don't be scared.

I just wanted to extend a "welcome" and also a suggestion that you can use the forum search feature for all the past threads and posts regarding Sphingolin in particular, before you buy it. I wouldn't take it for my peripheral neuropathy, but I know a few here have tried it.

You have probably found it already, but here is the link below to the forum search feature...
https://www.neurotalk.org/search.php
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Old 02-23-2022, 08:01 PM #6
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Welcome, scared39!

You're taking quite a few supplements. I hope you've studied up on just what they do and don't do, and how they might interact with one another.

I am very hesitant to take any medicine or supplement, especially for any neurological problem. And the older I get, the more cautious I am. Sometimes doing nothing and even cutting out one or two drugs or supplements can solve a lot of problems.

Also, you might want to look into your diet. There might be a nutrient you need, or a nutrient you're getting too much of. A dietitian or nutritionist can be useful.

Congratulations on cutting out the alcohol. That's not an easy battle but it sounds as if you've been winning it.
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Old 02-23-2022, 10:29 PM #7
scared49 scared49 is offline
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Quote:
Originally Posted by agate View Post
Welcome, scared39!

You're taking quite a few supplements. I hope you've studied up on just what they do and don't do, and how they might interact with one another.

I am very hesitant to take any medicine or supplement, especially for any neurological problem. And the older I get, the more cautious I am. Sometimes doing nothing and even cutting out one or two drugs or supplements can solve a lot of problems.

Also, you might want to look into your diet. There might be a nutrient you need, or a nutrient you're getting too much of. A dietitian or nutritionist can be useful.

Congratulations on cutting out the alcohol. That's not an easy battle but it sounds as if you've been winning it.
thank you agate for your suggestions. you’re right, i will look into a nutritionist to see about continuing all i’ve been taking. never thought of that. it did scare me a bit when my b6 was quite high. appreciate it!
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Old 02-23-2022, 10:25 PM #8
scared49 scared49 is offline
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Originally Posted by Lara View Post
Hi scared.
Don't be scared.

I just wanted to extend a "welcome" and also a suggestion that you can use the forum search feature for all the past threads and posts regarding Sphingolin in particular, before you buy it. I wouldn't take it for my peripheral neuropathy, but I know a few here have tried it.

You have probably found it already, but here is the link below to the forum search feature...
thank you lara,
will read up on sphingolin to see if i should start taking it.
appreciate your advice.
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Old 02-23-2022, 10:21 PM #9
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Originally Posted by caroline2 View Post
Jabs as many call them are the shots for this covid.

The directions are on the bottles of Inosine and Sphingolin, and Pure Formulas carry them both. Do some research on them

And probably Amazon as well, but I try not to shop Amazon.
thank you caroline,
will research to see if i should take them.
right, amazon is a bit scary to buy supplements. don’t know exactly where they are manufactured and coming from.
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