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10-07-2020, 08:02 PM | #1 | ||
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Junior Member
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Hi all...I have been dealing with crazy issues with my feet for a while since last year when things went downhill. I have been to my GP, NP, ortho surgeon, and endocrinologist. No one seems to know or care about whats going on with my feet. It started with swelling in both feet up and around my ankle, discoloration, it was hard getting around just doing daily stuff. I am experiencing numbness and tingling. The swelling has settled considerably but everything else is still there. I am also dealing with crazy toe pain they burn. Sometimes I get an electric shock feeling that will take your breath away.
The pain is always there of course worse at night and then the tightness in my feet kick in like I have on a compression sleeve very tight. Nothing is helping. Most doctors have said nothing is broken RICE your feet. I do that when I can but no improvement. Plus ice actually makes my feet hurt more. Its overuse pain they say. Not sure I buy that because of the burning in my toes. My endocrinologist is the only one that said it sounded like Neuropathy and suggested I have a visit with my Neurologist. I see him tomorrow and I am going hopeful but not expecting much in the way of answers to why my feet have decided to be a real pain. What can I expect from the neurologist. I trust him he is a good listener and very good at what he does with good patient doctor manners. It never occurred to me to see him.. My ortho said he could appreciate some good swelling. It was so bad I thought I might have a blood clot somewhere. I just want to know more about this Neuropathy. If that is what im dealing with and what kind. I know their is not a lot of treatment for it. That's my experience as of late with my foot pain. I will update after my appointment. |
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10-08-2020, 12:34 PM | #2 | ||
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Well I can say I am so glad I saw my neurologist today. He spent some time listening to what I have experienced over the last year. He did a few minor in office test and does seem to think I have peripheral neuropathy. He of course ordered some lab work that he wanted to review and is submitting an order for me to have a couple of nerve test done. He is starting me on a low dose of Gabapentan(sp??). I just felt relieved to know we were on.the same page. I have known for months this was more than overuse pain.
If my other doctors had truly listened to me I could've seen my neurologist soon and if I had thought to go to him first. I just didn't think about it at the time either. Now I know I'm not dreaming this up. So the process starts trying to figure all this out. He did tell me that some times they just can't find a direct link to why I have started experiencing neuropathy. I am fully aware of that. I am just glad he took my concerns seriously and is willing to look into this further. I will keep you updated as things progress. |
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10-08-2020, 01:29 PM | #3 | |||
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Have they checked for blood flow /vascular issues in the legs?
Not sure if it is a fit or not, but you might look at our RSD / CRPS forum just in case.. You don't want to use Ice if it is RSD/CRPS.. https://www.neurotalk.org/reflex-sym...rsd-and-crps-/ explore the useful sticky threads there..
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"Thanks for this!" says: | butterscotch444 (11-02-2020) |
10-08-2020, 07:49 PM | #4 | ||
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Junior Member
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We haven't made it that far. I'm just beginning this journey. I got my A1C back this evening and it is right on the line of pre-diabetes. It's at 5.7. I'm sure he will want to check that again. My est avg glucose something or other I can't remember what it is called now is 117. It will be interesting to see what the rest of my results are. I have read having autoimmune disorders, fibromyalgia, and having hypothyroidism can make you more likely to have neuropathy issues. It will be a process but I will get through it one step at a time.
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