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Old 12-24-2020, 10:37 PM #1
suzyt suzyt is offline
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Question Peripheral Neuropathy Diagnosis

Hi,
I have just been diagnosed with minor peripheral neuropathy after experiencing numbness in soles of my feet. Had EMG and this showed the diagnosis as minor, I think the numbness has been there for a long time like months. Previously I felt when walking bare feet on wooden floor that there was grains of sand but there wasn’t, that was years ago. Since my diagnosis I feel like the condition is moving first to the top of my feet and the slowly up my legs. Going back to my GP after Xmas but wondered if this is common and if the progression will get worse.
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Old 12-25-2020, 12:45 AM #2
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Hi suzyt

Welcome to the community .

It might be worth checking out the PN forum ( https://www.neurotalk.org/peripheral-neuropathy/) to see what kind of things members tend to ask.

I hope that your meeting with your GP goes well.

Best wishes.
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Old 12-25-2020, 10:29 AM #3
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welcome suzyt. Hope you find an answer.
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Old 12-25-2020, 01:46 PM #4
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Suzyt, welcome and you came to a good place for a lot of neuropathy information. a LOT... and since I've been dealing with it for over 10 yrs due to hip replacement, I can say it does a lot of strange STUFF in the body, mine for sure...I can speak only for me, and I'm learning more and more and managing what comes my way...some days I get what I know understand as a "flair" and then there is the normal every day nerve pain... Not fun but it's manageable.. Personally I have NOT seen doctors for this damage as for one, I do not take pharma drugs and that is what they offer...so for me, Dr. Google, friends and this forum get me thru it...

And foods can exacerbate it all, sugars are evil. Watch them and when I don't I pay.
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Old 12-29-2020, 06:58 AM #5
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Default Progressive Peripheral Neuropathy GP update

Saw GP today. Basically all blood tests ok, so back to neurologist for questions.
1. Could it be hereditary, both my sister (82) and my mother at 80+ years have had difficulty with their feet. Never found out what the problem was. Can I find out if it is hereditary because I have. 44 yr old son and 2 grandchildren. Want to know so I can let them know.

2. Does the progression that I am experiencing going to be worse sooner. Or is it going to progress slowly.

3. What preparations do I need to make in my life if progression is rapid.

Any advice, info is welcome particularly about hereditary stuff
Suzy
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Old 12-29-2020, 01:57 PM #6
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Makes me wonder if it is hereditary like Charcot Marie Tooth syndrome (CMT). EMG and NCV are good to have. Hope you find an answer. If it is CMT it will progress. And CMT is the most common "inherited" neuropathy.
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Old 01-13-2021, 10:42 PM #7
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Default Cmt

Quote:
Originally Posted by CMTMatt View Post
Try to get nerve velocity testing done as it sounds like it could be CMT, a common neuropathy that sometimes only shows itself later in life.
Thanks again. I am seeing my GP again because I can't get an appointment with the Neurologist until mid MARCH!!! I am going to try and get another Neurologist but fear that they will all be the same - long waits. In the meantime I am going to go onto the plant based diet - I am generally vegetarian, and don't have a lot of trans-fat food. Can't hurt I guess. Also, will mention my thyroid as it is marginal hypothyroidism to GP.

From what I have read so far, there is not a lot I can do other than good food, excercise. I guess I have to hope it doesn't develop too quickly. At the moment I feel that it has. I am 74
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Old 01-13-2021, 10:22 PM #8
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Default Grape Seed Extract

Quote:
Originally Posted by caroline2 View Post
Suzyt, welcome and you came to a good place for a lot of neuropathy information. a LOT... and since I've been dealing with it for over 10 yrs due to hip replacement, I can say it does a lot of strange STUFF in the body, mine for sure...I can speak only for me, and I'm learning more and more and managing what comes my way...some days I get what I know understand as a "flair" and then there is the normal every day nerve pain... Not fun but it's manageable.. Personally I have NOT seen doctors for this damage as for one, I do not take pharma drugs and that is what they offer...so for me, Dr. Google, friends and this forum get me thru it...

And foods can exacerbate it all, sugars are evil. Watch them and when I don't I pay.
Any suggestion on how much Grape Seed Extrat is useful Please.
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Old 01-01-2021, 03:04 PM #9
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Hi suzyt, and Welcome!

There are often long long waits for appointments with neurologists, I've noticed. I hope that when you finally have your appointment, there will be some helpful information coming your way.

You mentioned walking with bare feet. I have diabetes and was told (often) never to walk around barefooted or even with just socks on. This was hard for me to adjust to but over the years I've got used to always having shoes or at least substantial slippers on my feet.

The point is that if your feet are numb, you aren't going to notice it if something injures your foot. You might not notice it until you actually inspect your foot. Wearing shoes protects you from that kind of injury--which can turn into a serious problem pretty fast sometimes.

This suggestion won't help your symptoms to go away but maybe it will keep you from stepping on a tack or something else that could cause a problem.
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