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Old 04-08-2021, 11:23 PM #31
suzyt suzyt is offline
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Default Neurologist visit

After having many blood tests all showing normal my Neurologist has got me to get an MRI of brain and spine. This is to rule out MS. I知 having this done in a couple of weeks and visit to Neurologist May 20. He is confident that I have not got MS but also says that important to rule it out as part of my ongoing dealing with my sensory neuropathy it痴 crucial to stop looking for cause if none has been identified. The brain works in mysterious ways and if I focus too much on my condition it seems to exacerbate the neuropathy. I have noticed that when I am otherwise occupied I do not seems to notice it. The only aspect of it is that when I do heavy exercise my legs feel very heavy. So for the time being I am going to focus on the other parts of my life and meditation. If after my MRI I find out it is not MS I will get on with my life. If it is MS then I値l deal with that then.
Appreciate any thoughts. In case you have not read my earlier stuff, I have neuropathy in my feet which has not progressed in 6 months. But I have sensory neuropathy which started 6 months ago and progressed to most of my body.
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Old 04-09-2021, 02:01 AM #32
Atticus Atticus is offline
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Originally Posted by suzyt View Post
After having many blood tests all showing normal my Neurologist has got me to get an MRI of brain and spine. This is to rule out MS. I知 having this done in a couple of weeks and visit to Neurologist May 20. He is confident that I have not got MS but also says that important to rule it out as part of my ongoing dealing with my sensory neuropathy it痴 crucial to stop looking for cause if none has been identified. The brain works in mysterious ways and if I focus too much on my condition it seems to exacerbate the neuropathy. I have noticed that when I am otherwise occupied I do not seems to notice it. The only aspect of it is that when I do heavy exercise my legs feel very heavy. So for the time being I am going to focus on the other parts of my life and meditation. If after my MRI I find out it is not MS I will get on with my life. If it is MS then I値l deal with that then.
Appreciate any thoughts. In case you have not read my earlier stuff, I have neuropathy in my feet which has not progressed in 6 months. But I have sensory neuropathy which started 6 months ago and progressed to most of my body.
Hey Susyt,

What strikes me is at 74 you can do "heavy exercise" I don't think many 74 year olds exercise at all or are capable of exercising.

I think its a good idea to have an MRI scan of your brain and spine. I've had them and both negative. The chances of late onset MS for you are negligible given your lack of symptoms.

I think you've hit the nail on the head with respect to your attitude to your symptoms

"I have noticed that when I am otherwise occupied I do not seem to notice it."

If you were able to adopt the attitude that your symptoms were trivial and were dismissive of them, if you chose to ignore them wherever possible and just get on with your life, you could, in a way, set yourself free.

Too often, and I don't mean you at all, people become so preoccupied with their condition that it becomes part of their identity. They become experts in whatever they suffer with and it engulfs them. It takes over their lives.
I appreciate that some people's conditions give them no choice. You only have to read desperate heartbreaking stories on this site. But for many people we have a choice.

To quote John Milton

"The mind is its own place and in itself, can make a Heaven of Hell, a Hell of Heaven."

Anyways, thanks for the update. I hope you will let us know how you get on.

Take care and best wishes,

Atty
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Old 04-09-2021, 05:54 AM #33
suzyt suzyt is offline
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Thank you Atty, your comments here and elsewhere are an inspiration and am heartened by your optimism. Will certainly report after i have the MRI which by the am dreading because I get claustrophobic and will need Valium to get me through it.
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Old 04-09-2021, 01:32 PM #34
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Originally Posted by suzyt View Post
After having many blood tests all showing normal my Neurologist has got me to get an MRI of brain and spine. This is to rule out MS. I知 having this done in a couple of weeks and visit to Neurologist May 20. He is confident that I have not got MS but also says that important to rule it out as part of my ongoing dealing with my sensory neuropathy it痴 crucial to stop looking for cause if none has been identified. The brain works in mysterious ways and if I focus too much on my condition it seems to exacerbate the neuropathy. I have noticed that when I am otherwise occupied I do not seems to notice it. The only aspect of it is that when I do heavy exercise my legs feel very heavy. So for the time being I am going to focus on the other parts of my life and meditation. If after my MRI I find out it is not MS I will get on with my life. If it is MS then I値l deal with that then.
Appreciate any thoughts. In case you have not read my earlier stuff, I have neuropathy in my feet which has not progressed in 6 months. But I have sensory neuropathy which started 6 months ago and progressed to most of my body.
suzyt,
I hope that the medical tests you're undergoing can shed some light on the cause of your PN, and that they can offer some sort of remedy. My tests all came back negative, with an overall diagnosis of "idiopathic".

Keep moving! Keep meditating! Your best bet is keeping your positive attitude and focusing on the good in your life.
__________________
3/1/2011- diagnosed with Peripheral Neuropathy
April 2012- Treated for Hepatitis C, achieved SVR
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Old 04-13-2021, 10:56 PM #35
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Lara Lara is offline
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Will certainly report after i have the MRI which by the am dreading because I get claustrophobic and will need Valium to get me through it.
I get claustrophobic in the MRI machines too. The PET and CT are wide bore so I can deal with those. However, because I have so many of them all and because of the distress it causes me I am prescribed a twilight sedation added to the cannula as I get IV contrast. I still get extremely anxious and my BP goes through the roof, but if I didn't have this I would not be able to have any MRIs at all. Not many medical diagnostic facilities do this. They mostly just give patients needing light sedation some type of pill.

It might help to get in touch with your doctor or your GP so that they put "needs sedation" on the referral form. The facility that does give sedation in my area only does it on certain days of the week, so that's something you need to sort out in advance with them.

Of course, if you think you can deal with the 20 mins or so in the machine, then that's even better, but nobody should have to suffer with extreme anxiety.

Let us know how you get on.

.

Last edited by Lara; 04-13-2021 at 11:30 PM.
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