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Old 02-02-2021, 03:53 AM #1
suzyt suzyt is offline
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suzyt suzyt is offline
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Originally Posted by Atticus View Post
Hey suzyt,

Although you've not outlined in any detail your symptoms, the kind of onset you have described will not seriously affect your mobility ever. Ever. Generally for most people PN symptoms slowly gets worse, plateau, and then slowly improve.

I think its important to get outside and walk or cycle every day. Light and forward motion are very important for well being. Your body will adapt to exercise by preparing it for more exercise. Light and forward motion are very calming.

What are you doing to help yourself? I think it's important to create the optimum conditions to allow the body to heal itself. Tingling is actually a symptom of nerve axon regeneration.

Let us know how you are,

Atty
Thanks, I do fair bit of exercise. Wondering whether you have any idea how long it takes to plateau and also to go away? Appreciate your response.
Suzyt
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Old 02-03-2021, 03:13 AM #2
Atticus Atticus is offline
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Thanks, I do fair bit of exercise. Wondering whether you have any idea how long it takes to plateau and also to go away? Appreciate your response.
Suzyt
Hey Suzyt,

You are an amazingly fit 74 year old. Not many people your age can do what you do. I hope you realise that.

Neuropathy is awful. Neuropathy is grim. It wrecks your present and it steals your future and it even messes with your past. But only if you allow it to. Everyone who has had neuropathy has had some point feared a wheelchair loss of independence as their symptoms worsen. We are all human and we are all vulnerable. We all face uncertainty.

I can't answer your question, the one that you have been asking throughout this thread, namely, when will it all go away? I don't think even a neurologist could make an accurate prognosis such is the variability of symptoms for a given individual.

You appear to have got diet and fitness sorted and presumably supplements but I'm not sure you have manged the anxiety/stress that neuropathy brings.

I've been interested in the value of calmness, anxiety reduction, rest and sleep in healing/ well-being. In the first lockdown, I had 3 months paid leave and despite my PN symptoms I had a sense of peace and calm when the world and my career paused. It was a joy. My goal has been early retirement since.

I've been very much influenced by the neuroscientist and ophthalmologist Andrew Huberman. He has a podcast on YouTube. Although this isn't from the podcast, this is a good start.

The Science of Stress, Calm and Sleep with Andrew Huberman - YouTube

Headspace on Netflix is also a great introduction to Mindfulness, and meditation though I think its an advert for a Paid for App.

One thing that Huberman talks about as a method for easing ourselves to sleep is to focus on Gratitude last thing at night. This engages our nervous system switches off the fight/flight reflex and so aids restful sleep.

We should count our blessings, not sheep!
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Old 02-03-2021, 08:30 AM #3
suzyt suzyt is offline
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suzyt suzyt is offline
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I really appreciate your feedback and I believe I can benefit from addressing the stress aspect of my life. I guess my original question about when it will go away, also asked on what basis do you think the PN will plateau and then recede? Is this common? If it is then I can deal with my current symptoms. If it is not common but has been known to go away upon dealing with the stresses in ones life that’s another marker. Each day my symptoms get worse. It’s hard to see how this gets better. Appreciate further thought on this.
I will also put more attention to your suggestions on calmness.
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"Thanks for this!" says:
Atticus (02-06-2021)
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