Had my 2nd appointment with Neurologist and he did another EMG and the measurements were the same after 2months. Talked about what I described as it progressing to the point where I can feel it all over. He didn’t seem bothered about this and said sometimes the brain tricks the body. I have to get some more blood tests and chest X-ray to eliminate other factors which he didn’t elaborate. I go back in 6 weeks.

As I read what I have written it sounds like he was not that good but I feel more comfortable now about things. He did talk about sensory neuropathy and I am a bit confused about the difference. Anyone have any ideas?

That sounds encouraging suzyt.

I hope that things work out well for you.

Hey suzyt,

Glad to see you got to see your neurologist. I copy and pasted this from the link below. The link is fairly comprehensive.

Type of Nerves

1. Motor
2. Sensory
3.Autonomic

Motor nerves control the movement of all muscles under conscious control, such as those used for walking, grasping things, or talking.

Sensory nerves transmit information such as the feeling of a light touch, temperature, or the pain from a cut.

Autonomic nerves control organs to regulate activities that people do not control consciously, such as breathing, digesting food, and heart and gland functions.

Peripheral Neuropathy Fact Sheet | National Institute of Neurological Disorders and Stroke

Best wishes

Attty

Thank you for the information. Things are a bit more clearer. I now wait for my next appointment in 6 weeks to see outcome of blood tests and X-ray.

Anyone with PN and has had Covid vaccination and has had adverse reaction please. I am due for Astra Zeneca one soon.

Thanks in advance

Hey Suzyt

I had the Pfizer vaccine in January and apart from a sore shoulder for a day had no side effects.

After having many blood tests all showing normal my Neurologist has got me to get an MRI of brain and spine. This is to rule out MS. I’m having this done in a couple of weeks and visit to Neurologist May 20. He is confident that I have not got MS but also says that important to rule it out as part of my ongoing dealing with my sensory neuropathy it’s crucial to stop looking for cause if none has been identified. The brain works in mysterious ways and if I focus too much on my condition it seems to exacerbate the neuropathy. I have noticed that when I am otherwise occupied I do not seems to notice it. The only aspect of it is that when I do heavy exercise my legs feel very heavy. So for the time being I am going to focus on the other parts of my life and meditation. If after my MRI I find out it is not MS I will get on with my life. If it is MS then I’ll deal with that then.
Appreciate any thoughts. In case you have not read my earlier stuff, I have neuropathy in my feet which has not progressed in 6 months. But I have sensory neuropathy which started 6 months ago and progressed to most of my body.

Hey Susyt,

What strikes me is at 74 you can do "heavy exercise" I don't think many 74 year olds exercise at all or are capable of exercising.

I think its a good idea to have an MRI scan of your brain and spine. I've had them and both negative. The chances of late onset MS for you are negligible given your lack of symptoms.

I think you've hit the nail on the head with respect to your attitude to your symptoms

"I have noticed that when I am otherwise occupied I do not seem to notice it."

If you were able to adopt the attitude that your symptoms were trivial and were dismissive of them, if you chose to ignore them wherever possible and just get on with your life, you could, in a way, set yourself free.

Too often, and I don't mean you at all, people become so preoccupied with their condition that it becomes part of their identity. They become experts in whatever they suffer with and it engulfs them. It takes over their lives.
I appreciate that some people's conditions give them no choice. You only have to read desperate heartbreaking stories on this site. But for many people we have a choice.

To quote John Milton

"The mind is its own place and in itself, can make a Heaven of Hell, a Hell of Heaven."

Anyways, thanks for the update. I hope you will let us know how you get on.

Take care and best wishes,

Atty

suzyt,
I hope that the medical tests you're undergoing can shed some light on the cause of your PN, and that they can offer some sort of remedy. My tests all came back negative, with an overall diagnosis of "idiopathic".

Keep moving! Keep meditating! Your best bet is keeping your positive attitude and focusing on the good in your life.