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07-31-2021, 12:24 PM
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Junior Member
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Hi everyone who suffers
I am a 59 year old male who has been suffering for many years ! I had multiple nerve entrapment issues and surgery to correct them carpal tunnel and ulnar nerve over three times each. This is now 5 years later and I get horrendous feet electric shocks and burning up my shins and calves. Arms burn too pretty much all the time. Neurologist consultant has found I have zero reflexes and fail the balance tests. So I am now awaiting nerve conduction velocity tests (again after 4years) So this is me! |
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07-31-2021, 10:06 PM
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Legendary
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Hi Mark,
Welcome to the NeuroTalk Support Groups. I'm sorry you've been dealing with this pain for so long. I'm sure you'll find information and support here. Check out some of the other forums as well. Repetitive Strain Injury Forum. This is a subforum of the Thoracic Outlet Syndrome Forum. Peripheral Neuropathy Forum Some forums are slower than others, but the Search Feature at top of the page is useful if you use specific keywords. Just examples... entrapment, compression, neuropathies. take care. |
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08-01-2021, 03:02 AM
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Junior Member
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Thanks for the comment
At the Neurology appointment last week she said my reflexes were now "abolished" and pin prick sensation almost non existent in my right foot and poor on the left. When I stand on a cold bathroom floor I cannot feel anything. I have been checked for SFN biopsy clear. Conduction studies 2018 were normal. As the neurologist thinks it's much worse she is sending me for these again. Awaiting appointment. In a way I hope they show I have PN just to stop me feeling like a fraud. |
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08-01-2021, 11:40 AM
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Senior Member
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Welcome, Mark D!
I hope that the neurologist can come up with some answers for you very soon. You've been the surgery route a few times. Sometimes, unfortunately, surgery creates new problems. I hope that this time a nonsurgical treatment can be found for you. Surgery is invasive, and I'd hesitate about opting for it.  
__________________
Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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| "Thanks for this!" says: | Lara (08-01-2021) |
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08-01-2021, 12:48 PM
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Grand Magnate
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Welcome Mark D.
__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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| "Thanks for this!" says: | Lara (08-01-2021) |
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08-02-2021, 11:56 PM
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Member
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Quote:
I just wanted to ask you what Physical Therapy if any the NHS has offered you? Or have you tried physio etc? Best wishes, Atty |
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| "Thanks for this!" says: | Lara (08-04-2021) |
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08-04-2021, 10:26 AM
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Junior Member
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No physical therapy at all
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| "Thanks for this!" says: | Lara (08-04-2021) |
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Hello I am new here
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