 |
|
| New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
| Reply |
|
|
Thread Tools | Display Modes |
08-28-2021, 08:51 PM
|
#1 | ||
|
|||
|
Newly Joined
|
i was diagnosed with myasthenia gravis about 3 months ago. Needless to say I am totally freaking out. Not sure I can or want to live like this.
one of my biggest problems is that I cant keep my head upright without a major balancing act and help from my hands.. i originally bought a cheap cervical collar but it is too big and does not help at all. My head just learned how to bend with it on. I am wondering if any of you new friends have found a solution to keeping your head up with some range of motion.. I am new to this site, so i have no idea how to know if anyone responds to this. I shall post this and hope for the best |
||
|
 Reply With Quote
|
| "Thanks for this!" says: | Lara (08-29-2021) |
|
08-29-2021, 11:16 AM
|
#2 | |||
|
||||
|
Senior Member
|
Welcome, Syl73!
I'm so sorry you've been diagnosed with MG but it sounds as if you've been trying to get along with it. A doctor can advise you on the cervical collar, or did you get the collar with a doctor's rx? If so, I think you should try to get a properly fitting collar. It could make a big difference.
__________________
Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20 |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Lara (08-29-2021) |
|
08-29-2021, 04:13 PM
|
#3 | ||
|
|||
|
Grand Magnate
|
Welcome Syl73.
__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
||
|
|
Reply With Quote
|
|
08-29-2021, 05:59 PM
|
#4 | ||
|
|||
|
Newly Joined
|
Quote:
|
||
|
|
Reply With Quote
|
|
08-29-2021, 08:57 PM
|
#5 | |||
|
||||
|
Co-Administrator
Community Support Team
|
Maybe our search tool can find info on neck brace or neck weakness...
https://www.neurotalk.org/search.php
__________________
Search NT - . |
|||
|
|
Reply With Quote
|
|
08-29-2021, 11:34 PM
|
#6 | ||
|
|||
|
Legendary
|
Hi, welcome to the NeuroTalk Support Groups.
Check out the Myasthenia Gravis Forum I ran a quick search just using the word "brace" and a lot of older posts came up on the MG forum. It's a fairly quiet forum lately, but there is a lot of older information there that may be helpful. I posted one of the threads below. There were others related to the neck etc.. If you ever need any help with finding things, just post and someone will help you out. head drooping Another thought is asking advice of a physio. Take care there and please make sure that you talk to your doctor about this issue. Also, here's the link to the FAQ in case you need it sometime - Frequently Asked Questions |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | agate (08-30-2021) |
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Head Sensitivity to Motion Solved!!! | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Hit my head 9 days ago, never been seen by dr. Need advice please | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Loss of motion range a RSD symptom? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
| Is Head Sensitivity to Motion unusual for PCS? | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Tos-losing range of motion | Thoracic Outlet Syndrome | |||
advice to keep head upright with some range of motion
Linear Mode
