New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 01-02-2022, 08:40 AM #1
JudyNDJungle JudyNDJungle is offline
Newly Joined
 
Join Date: Jan 2022
Posts: 1
2 yr Member
JudyNDJungle JudyNDJungle is offline
Newly Joined
 
Join Date: Jan 2022
Posts: 1
2 yr Member
Default My Mystery Symptoms

Greetings, I am joining this forum in an effort to discover more about my non-specific peripheral neuropathy, its potential causes, and any ideas about supplements or nutrition that might prove helpful in mitigating the symptoms.

My age: 65
Age at Onset: 57

My symptoms:
  • constant tingling/numbness in my hands and feet that NEVER goes away. Also, sporadic numbness, tingling, and zinging on face. tongue, sometimes it even feels like my gums are tingling and numb.
  • pins and needles that are random throughout body
  • Zinging (feels like electrical charges) random all throughout the day.
    Sporadic internal tremors

Tests/Treatments
Nerve Conduction Test: Passed with the exception of slight carpal tunnel in hands. Given wrist supports to sleep in at night. No negligible difference.

X-rays: All clear, no pinched nerves indicated.

Bloodwork: Showed a slight deficiency in Vitamin B12. Took Vitamin B12 shots once a week for several months. No difference. Last bloodwork revealed no deficiency.

Acupuncture: Went to an acupuncturist for several months weekly. No negligible difference.do

Chiropractic Treatments: Paid for a series of treatments. No difference in symptoms.

Lyme Disease Test: Negative

My first neurologist visit was in 2013. I am scheduled for a new round soon.
My first diagnosis was non-specific peripheral neuropathy. For the last seven years, symptoms have remained constant but have not escalated. The past six months, I am now seeing an increase in severity and strength of symptoms.

They are with me constantly. And when I am up and moving about, I am able to "deal" with them. But when I am stationary or trying to go to sleep they are in high gear and I often can't sleep for hours. I have been taking a small amount of edible THC gummies and they help me sleep but do not help with the symptoms.

Other things to know about me: I lived in the jungles of Belize from 2006-2013. I have wondered if my symptoms are the result of a tropical parasite or disease. I have been tested for Chagas disease, a well-known tropical disease and tested negative for that.

Any suggestions or others with similar symptoms?

Thanks for the opportunity to share.

JudyNDJungle
JudyNDJungle is offline   Reply With QuoteReply With Quote
Old 01-02-2022, 09:39 AM #2
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,438
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,438
15 yr Member
Default

Welcome JudyNDJungle. Someone will be along.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 01-02-2022, 09:54 AM #3
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Actually--

--doesn't sound like you've had that extensive a work-up, overall.

See:

An Algorithm for the Evaluation of Peripheral Neuropathy - American Family Physician

Quest Diagnostics: Test Directory
glenntaj is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (01-02-2022)
Old 01-02-2022, 11:31 AM #4
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
Default

Welcome, JudyNDJungle!

I wish I could be more helpful but all I can say is that if I were you, I'd take a very close look at any meds I'm taking first of all. I'd look them up and see what their possible side effects are. Then I'd try eliminating any that might be contributing to my symptoms.

I'd also look carefully at my diet. I might consult a nutritionist or at least make sure I'm tested for dietary imbalances.

You may have gone this route a long time ago but that's all I can suggest. I hope you'll be able to find some answers soon.
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
agate is offline   Reply With QuoteReply With Quote
Reply

Tags
difference, disease, months, sleep, symptoms


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Mystery tamimom Peripheral Neuropathy 4 01-29-2015 02:14 AM
Mystery Kitty The Stumble Inn 12 10-24-2012 03:11 PM
The mystery of ALS BobbyB ALS News & Research 1 12-02-2007 10:54 AM
A Mystery Barbara H. Clark New Member Introductions 3 06-02-2007 07:20 PM
A Mystery Barbara H. Clark Parkinson's Disease 4 06-02-2007 04:56 PM


All times are GMT -5. The time now is 06:33 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.