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Old 11-13-2012, 04:13 PM #1
lilygirl1990 lilygirl1990 is offline
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Hi im new to this in june i was diganosed with a seziure disorder and found out i have an arcnoid cyst in my left tempral lobe ive been hospitalized had 6 EEGS and they still cant figure out what is causing the seizures the meds dont help and i just feel helpless and out of control
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Old 11-14-2012, 02:24 AM #2
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Wink Nice to meet you!!

lilygirl,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

You should see an Epileptologist (Dr. specializing in epilepsy) at an Epilepsy Center which are usually at University or Large hospitals. Your need to cut out the carbs and starch foods because they will trigger seizures. Start keeping track of your seizures by writing them down on a calendar, by doing this the Dr. may see a pattern in your seizures. Get yourself on vitamin B12 500 mcg. once a day. Also avoid very bright light, like at a theater, the flashing can bring on a seizure. Just close you eyes and turn your head at that time. There are a great number of things to inform you on in following forum there is a good number of fellow members to assist you.

Epilepsy:
http://neurotalk.psychcentral.com/forum11.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

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Old 11-14-2012, 04:28 PM #3
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Smile Hello Lilygirl!

Welcome to NT!

You've certainly found a wonderful place for support and understanding!
People here are very caring and it's such a down-to-earth atmosphere.

Make yourself right at home and post in any of the forums you feel inclined. There's a friendly soul around every corner.
Just holler if you need help finding your way around or if you have any questions.

It's great to have you!

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Old 06-18-2022, 06:32 PM #4
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Hi my name is David I have just joined this because I have a arcnoid cyst that has been leaking in to my face do you know where I can get help for that thanks, kind regards David
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Old 06-19-2022, 11:08 AM #5
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Welcome Lilygirl1990.
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Old 06-19-2022, 11:10 AM #6
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Welcome David Hanna.
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Old 06-19-2022, 12:00 PM #7
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Welcome, David Hanna!

Sorry I can't give any useful information about your arachnoid cyst question but I wonder if you're tried entering "arachnoid cyst" in the Search window here at NeuroTalk? I tried it and quite a few discussions came up.
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Old 06-20-2022, 08:14 AM #8
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Hello David,
We don't have a specific section for Arachnoid Cyst, but I think most of the discussion on it has taken place on our Spinal Disorders Forum?
https://www.neurotalk.org/spinal-dis...and-back-pain/

Hopefully you will find the info you are seeking. All the best to you.
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