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Old 10-25-2022, 12:31 PM #1
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Default Hello I am new

Hello everyone, my name is Amanda. I just joined. I am needing support for my health conditions. I have two rare neurological conditions one is Dystonia, the other is unknown neurological condition. I was born with both. I was diagnosed at the age of 13 and my conditions progressed quickly. By the time I was 15 I was unable to move. I got brain surgery for a deep brain stimulator implant in 2010. I got the opportunity to have 29 news station to do a story on my life to spread awareness for Dystonia and DBS. I later got diagnosed with autism and savant syndrome in 2014 by mental health professionals and my neurologist. I also was diagnosed with fibromyalgia and full body nerve damage.
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Old 10-25-2022, 07:49 PM #2
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Hi Mandy,
Welcome to the NeuroTalk Support Groups.

If you need any help finding your way around please just let us know and I'm sure someone will help.
take care.
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Old 10-26-2022, 08:49 AM #3
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Welcome BatBratMindy.
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Old 10-26-2022, 11:49 AM #4
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Welcome, BatBratMindy!

So sorry you've had disabling conditions thrown at you but at least this is a place where you can visit for information and support.

You might find some useful posts in the Movement Disorders forum here. If you need help finding it, just speak up.
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Old 10-28-2022, 07:28 PM #5
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Welcome to the community.

I hope that other members here will offer you helpful ideas.

Best wishes.
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Old 11-12-2022, 02:03 PM #6
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Thank you for the warm welcome.
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Old 12-26-2022, 04:07 AM #7
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Default Big Hill

Hello Amanda.

I just joined the site, and was hopping around in the Intros. You were given a big hill to deal with , with your conditions. Which I have never heard of.
But I guess it must be very tough on you, in many ways. I hope, like me you find info and bump into people in here who can help / understand your position. Sending kind regards. Kimberley.
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