Hello everyone, my name is Amanda. I just joined. I am needing support for my health conditions. I have two rare neurological conditions one is Dystonia, the other is unknown neurological condition. I was born with both. I was diagnosed at the age of 13 and my conditions progressed quickly. By the time I was 15 I was unable to move. I got brain surgery for a deep brain stimulator implant in 2010. I got the opportunity to have 29 news station to do a story on my life to spread awareness for Dystonia and DBS. I later got diagnosed with autism and savant syndrome in 2014 by mental health professionals and my neurologist. I also was diagnosed with fibromyalgia and full body nerve damage.

Hi Mandy,
Welcome to the NeuroTalk Support Groups.

If you need any help finding your way around please just let us know and I'm sure someone will help.
take care.

Welcome BatBratMindy.

Welcome, BatBratMindy!

So sorry you've had disabling conditions thrown at you but at least this is a place where you can visit for information and support.

You might find some useful posts in the Movement Disorders forum here. If you need help finding it, just speak up.

Welcome to the community.

I hope that other members here will offer you helpful ideas.

Best wishes.

Thank you for the warm welcome.

Hello Amanda.

I just joined the site, and was hopping around in the Intros. You were given a big hill to deal with , with your conditions. Which I have never heard of.
But I guess it must be very tough on you, in many ways. I hope, like me you find info and bump into people in here who can help / understand your position. Sending kind regards. Kimberley.