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11-13-2022, 03:00 PM | #1 | ||
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Newly Joined
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Hi there.
I'm new here. I was diagnosed in 2015 with MMN Originally misdiagnosed with something similar and told I had 5 years to live. Well anyway I told them they were wrong the next day, after praying to God for several hours through my tears during the night. Finally told I had MMN I've been on ivig ever since. I struggle mentally often with it, more so as the ivig begins to wear off. I stress about the future,. I was originally every 12wks, then 10, 9, and now 7wks, but even now I'm ready after 5, as I notice I'm needing to pull my *** up the stairs. I have also started to experience jelly legs now and then, and my ankles will just mis-step and my legs will just crumble beneath me, happened again today whilst out on a stroll. I'd literally just said to my daughter, hey my legs feel all jelly, then 2 minutes later my kept ankle just went, and down I did go! This has knocked my confidence and added to my stress, especially as I've only just had my ivig on Monday and Tuesday. Anyone else have similar experiences? Thanks 👍 |
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