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Old 03-24-2023, 01:03 AM #1
RobH RobH is offline
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Default phrenic nerve

Hi all, This post is a desperate call out for help. I live in Australia, 2 years ago I had a quadruple bypass which blocked, had two stents which blocked another angiogram that found 1 stent block then I was told I had lipo[rotienA which is an inherited cholesterol problem. On m4edicatoin and no problems. Prior to the last angiogram I have had problems breathing which over the last 12 months has developed into severe giddiness, headaches, fatigue, extreme short of breath.I have has every known test, more angiograms scans nerve tests you name it I have had it and it all points to having a phrenic nerve problem but my GP my oncologist and my cardiologist cannot find any doctor that knows anything about a phrenic nerve, I know more than most doctors. So I am seeking any contact anywhere of a doctor that specialises in this nerve, anyone that knows where I can get help, any doctor in Australia that know about it. I am deteriorating slowy that walking 10 yards is a problem.
Kindest regards
Rob Harrison
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Old 03-24-2023, 08:24 AM #2
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Welcome RobH. Someone will be along.
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Old 03-24-2023, 10:06 AM #3
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Welcome, RobH!

I wonder if you've been seeing neurologists? A neurologist would be the type of doctor most likely to know about phrenic nerve damage.

I found this:

Phrenic Nerve Injury - StatPearls - NCBI Bookshelf



It sounds as if you have already been through quite an ordeal. I hope that you can find some competent medical care very soon.
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Old 03-24-2023, 03:45 PM #4
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You can try our search tool (link in my siggy)
or scroll to bottom of this page to see some related threads on the same topic.
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Old 03-24-2023, 04:49 PM #5
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Hi Rob,
Welcome to the NeuroTalk Support Groups.

You mention your oncologist.I'm wondering if you're presently on any particular treatment such as chemotherapy, targeted therapy or immunotherapy or some other type?

edited later. --- The reason I wondered about the treatments was because my first thought naturally was neuropathy, however I was just reading some info from the USA regarding diaphragm Pacemakers (this is one example Diaphragm Paralysis Avery Biomedical Devices, Inc.) that keep the diaphragm pumping. That link gives a little info but that's not able to be used in certain situations/diseases.

Have your doctors given you any idea of what may have caused this problem? (e.g the heart surgeries?)

I did see in PubMed that certain chemotherapy can cause it in extremely rare situations. Very, very uncommon. Radiation also.

There would be excellent Thoracic specialists at places like St. Vincents I would imagine. I'm surprised your Cardiologist hasn't helped you more. That's a shocking and serious situation you find your self in.

Thoracic physicians in Australia

Last edited by Lara; 03-25-2023 at 12:02 AM.
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