NeuroTalk Support Groups - new Tarlov Cyst diagnosis

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- - new Tarlov Cyst diagnosis (https://www.neurotalk.org/new-member-introductions/26498-tarlov-cyst-diagnosis.html)

Quote:

Originally Posted by lzima (Post 476674)

I know exactly what you are going though,don't let any doctor tell they don't cause pain,they do.I now have permanent S1 nerve damage and disabled from having a Tarlov cyst.So this doctor can help you,Dr. Frank Feigenbaum in Kansas City,Kansas.Don't wait around.Once the cyst gets too large this can happen.I had so many doctors tell it was not what I had,well it was.

I have just been diagnosed with a tarlov cyst in the cervical/thoracic area. I am seeing Dr. Feigenbaum here in Kansas City, Missouri. Are you a patient of his? Has he solved your TC problem? Anyone know anything about a TC in the cervical/thoracic area? I can't find any information about a TC in this area.
:confused:

I was diagnose this week with Tarlov cysts on my cervical spine (3). I had onging back, neck and arm pain which led me to get an MRI. I'm looking for docs who specialize in this in New York City (East Coast is fine too) as well as any suggestions for alternative therapies (supplements, etc..).

Thanks, Alicia

Quote:

Originally Posted by nanarose (Post 139978)

hi there...i am new to this forum and am looking for others that have this diagnosis that have been having problems finding help...i only recently was diagnosed and have had severe back problems for many years...i saw a neurosurgeon earlier this week who told me that these cysts do not cause pain...of course he could not tell me what was causing my severe arm pain despite the fact that there are new cysts (they were not there last year at this time) and no explanation for my arm pain...the cysts are cervical with one in the lumbar area which he refused to even discuss with me...so if you have any names of mds that are open to this diagnosis being painful i would appreciate the info...thanks and take care all...lisa

Hi, I also recently found out I have a tarlov cyst on my S2. The MRI reading said it was incidental, of course, but from what I have read, I'm definitely having symptoms. There is little help or understanding out there, and I don't understand why. I sympathize:( If any one could also point me to a doctor who I could at least talk with, that would be great.