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Originally Posted by nanarose
hi there...i am new to this forum and am looking for others that have this diagnosis that have been having problems finding help...i only recently was diagnosed and have had severe back problems for many years...i saw a neurosurgeon earlier this week who told me that these cysts do not cause pain...of course he could not tell me what was causing my severe arm pain despite the fact that there are new cysts (they were not there last year at this time) and no explanation for my arm pain...the cysts are cervical with one in the lumbar area which he refused to even discuss with me...so if you have any names of mds that are open to this diagnosis being painful i would appreciate the info...thanks and take care all...lisa
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Hi, I also recently found out I have a tarlov cyst on my S2. The MRI reading said it was incidental, of course, but from what I have read, I'm definitely having symptoms. There is little help or understanding out there, and I don't understand why. I sympathize
If any one could also point me to a doctor who I could at least talk with, that would be great.