Hi - I have never done this before, and it feels a little odd- but I am desperate to get info on my illness- I was diagnoised with Pernicious Anemia 22 years ago, but was never put on b12 shots. My symptons have stumped the doctors for the past 22 years, many of the doctors I saw noticed my b's were low and would suggest that I be put on b12 shots, and one doctor went so far as putting me on the shots while my doctor was on Maternity leave, when my doctor got back she took me off the shots, she has been treating me for depression and felt low b's had nothing to do with my symptons. Last year I had become so sick that I thought I was dying and I decided to go on the internet to see if I could find any disease that matched my symptons- and to my surprise every single on of my symptons was related to pern. anem.. My research also lead me to belive that mine is probably congenital. I have been trying to find info on longterm without treatment, I would really like to know what improvement I can expect!!!!!
I know this won't make any sense but I have been on the shots since Jan/07 and for the past 6 weeks have been feeling like I am getting worse. I can not find any current info on long term untreated!
If anyone out there has any info on what kind of recovery I can expect I would be grateful.
Leeanne