Hello all! I'm grannie frannie and I have recently been diagnosed with Tarlov's
disease. It's been an almost three year journey and I'm sure most of you
know what a journey it has been. For the last three years I have been thru
all the paces. The first MRI studies indicated a degenerative disc at L3/4 level. That turned out to be the red herring that kept me and the dr.s going
through every test available. All along I kept saying that place did not hurt and I kept showing them where it did. I didn't give up (of course it should be
said I'm a bit like a dog with his last bone) and kept searching for a doctor
who could tell me what it was and the biggest problem I kept running into is
the doctors would sometimes become angry with me because I questioned
authority. My accupuncturist listened and had mri's done that showed a 5 cm
cyst on my S2 nerve. Even then the first doc I saw at Portland OR's OHSU pooh poohed it and sent me back to my pain dr. A year later I'm back to see another nuerologist who see's the cyst which is now 7 cm. I go back in a couple of months to talk about the future. Any questions I should take back
to them that has been helpful to anyone here? I could sure use your input and thank you all for being here.
months

Welcome to NeuroTalk grannie frannie! Here is the link to our Tarlov Forum

http://neurotalk.psychcentral.com/forumdisplay.php?f=87

I'm glad you found us!

H granniefrannie and welcome.

Hello, Granniefrannie! Welcome to Neurotalk. I see that you are a visitor. I hope that you like it around here and that you decide to come on board as a member. I am sure that you will enjoy being here, as I do. Neurotalk has many wonderful people that are here to listen and help when they can. Hope to see you around and again,

Granniefannie,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

I want to thank everyone for being here and welcoming me into the fold!
I lost my password book and couldn't log on. Very helpful, the password
help button. I look forward to being a part of this forum. Hang in everyone!
I'm grateful for the people here who unfortunately share my pain. I hope
the best results for you all.

grannie frannie:

Hi, GrannieFrannie! Welcome to NeuroTalk!

I love that name!