Hi

My name is Liz and I have a one year old daughter with hydrocephalus and epelipsy.Sinead had a vp shunt in at 2 days and was doing really well until she started having fits in May and was diagnosed with epelipsy.Sinead is now on 3 anti convulsants and has been fit free since Aug 30th(phew).She is really doing great at the moment.

I had no knowledge of hydrocephalus or epelipsy until Sinead was dignosed, and really am interested in why the fits started at 8months and really advice from other people. When the fits started we put everything on hold e.g days out etcc and stayed close to home and hospital.Now that things are soooo much better I am trying to do more ,and whilst remaining cautious but want to do fun things with Sinead.

We have not been to Ireland since the fits(we were too nervous to travel).
Since birth Sinead has flown 3 times and was fine(no problems with the shunt etc...).

I think the site is great and am sorry I did not find it earlier.

Liz