[msjake]

Hello Everyone......my Name Is Angela .....i Live In Sc. I Have Been Going To Doctors For Almost 4 Years. I Was Diagnosed In January Of This Year With Interstitial Cystitis. I Have Had Several Mri And Ct Scans And They Showed That I Have Tarlov Cyst.......but Doctor's "think" They Don't Cause Pain.......but They Do........a Lot Of Pain!!!! I Am So Frustrated I Have Been To Doctor's Everywhere And They All Say The Same Thing............

If Anyone Have This Same Problem Feel Free To E-mail Me!

[Jomar]

Hello and welcome...

[Darlene]

Angela,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

[DM]

Hi Angela and Welcome! Sorry for all the pain you are going through. I'm sure you'll find lots of good info here. Just keep hanging in there and again, I'm glad you found us...

[AfterMyNap]

Hi, Angela! Welcome to NeuroTalk!

[watsonsh]

HI Angela,

Just wanted to say hello! Welcome.

I don't know much about Tarlov Cysts but I am sorry to hear about your pain.

You'll find warm caring and great listeners here. Let us know if you need any help getting around the forums.

Sorry about the inconvenience, but I haven't the requisite 10 posts, yet, allowing me to directly post a URL.
Cut 'n paste the url's into your browsers' adrdess bar. replace all the -dot- with a "."

Tarlov Cysts
From: ninds-dot-nih-dot-gov/disorders/tarlov_cysts/tarlov_cysts-dot-htm

>>>> "What are Tarlov Cysts?
Tarlov cysts are fluid-filled sacs that most often affect nerve roots in the sacrum, the group of bones at the base of the spine. These cysts can compress nerve roots, causing lower back pain, sciatica (shock-like or burning pain in the lower back, buttocks, and down one leg to below the knee), urinary incontinence, sexual dysfunction, and some loss of feeling or control of movement in the leg and/or foot. Pressure on the nerves next to the cysts can also cause pain. Tarlov cysts may become symptomatic following shock, trauma, or exertion that causes the buildup of cerebrospinal fluid. Women are at much higher risk of developing these cysts than are men.

Is there any treatment?
Tarlov cysts may be drained to relieve pressure and pain, but relief is often only temporary and fluid build-up in the cysts will recur. Corticosteroid injections may also temporarily relieve pain. Other drugs may be prescribed to treat chronic pain and depression. Filling the cysts with fat has not been shown to work. Injecting the cysts with fibrin glue (a combination of naturally occurring substances based on the clotting factor in blood) may provide temporary relief of pain. Some scientists believe the herpes simplex virus, which thrives in an alkaline environment, can cause Tarlov cysts to become symptomatic; making the body less alkaline, through diet or supplements, may lesson symptoms. Microsurgical removal of the cyst may be be an opton in select individuals who do not respond to conservative treatments and who continue to experience pain or progressive neurological damage.

What is the prognosis?
Most Tarlov cysts do not cause pain, weakness, or nerve root compression. Acute and chronic pain may require changes in lifestyle. If left untreated, nerve root compression can cause permanent neurological damage.

What research is being done?
The NINDS, a component of the National Institutes of Health within the U.S. Department of Health and Human Services, vigorously pursues a research program seeking new treatments to reduce and prevent pain and nerve damage." <<<<

All the currently available research, from PubMed:
ncbi-dot-nlm-dot-nih-dot-gov/sites/entrez?term=tarlov%20cysts%20AND%20human%5Bmh%5D%2 0AND%20english%5Bla%5D&db=PubMed&orig_db=PubMed&cm d_current=Limits&pmfilter_EDatLimit=added%20to%20P ubMed%20in%20the%20last%205%20years&cmd=search