Hi! I'm Jamie. I came upon this forum through a web search for Coping with Occipital Neuralgia. I finally spoke with my doctor on Monday this week and she mentioned the term Occipital Neuralgia to me as my diagnosis. I've been in pain for the past 7 1/2 yrs; same pain that I've described to every doctor that I've gone to. I even show them the spot that always hurts and it usually transforms into a headache or a full blown migraine. Anyway, I've had headaches and migraines even prior to 7 1/2 yrs. ago, but it was mostly hormonal, I believe, and didn't occur as often as since 2000. The reason is because I suffered a rare kind of stroke. It started with a vertebral artery disection, causing a blood clot to form and travel in essence. Thus, it caused a left Occipital Lobe Infarction. This means that I'm right peripherally blind in both eyes. I know I'm making this rather lengthy but if others out there that have been diagnosed with this Occipital Neuralgia need someone else to talk to and maybe find answers, maybe I can help them as well. I've been on many medications, including anti-seizure medicines, anti-depressents, anelgesics, opioids and narcotics. I hate taking medication, but sometimes because the pain in so bad I get that desparate. My husband, family, and friends I know don't understand what I'm going through because they haven't been through the above mentioned. All I've ever asked from them is support. Work can be difficult, especially since even my bosses get concerned about the medications that I take (not that it's any of their business). I know they have a business to run, but I also think I have rights as a person with a disability.

I will cut this short, but if anyone has any questions, I will certainly do my best to find the answer.

Best Wishes,
LuiigiPeach (aka Jamie)

and to our little corner of the world!!!

So Glad you found us!!!


If you have any questions... please don't hesitate to ask...someone will be around shortly that can help you out!!


Abbie

Jamie,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

You should find some assistance on this link. Don't be afraid to ask, we are all here for each other.

http://neurotalk.psychcentral.com/sh...ital+Neuralgia

Again welcome, looking forward to seeing you around.

Darlene

Hi Jaimie and Welcome. I feel so bad for anyone who suffers from severe headaches. My DD suffers all the time and is currently awaiting MRI results. I hope you can find some good info and help here; NT is a great place. Welcome again...

Hi, Jamie! Welcome to NeuroTalk!

I'm sure there are many who can benefit from your experiences. Thanks for joining us!