Hello all, My name is Carla and I have recently been diagnosed with TOS. My hardest part about this is dealing with the pain and trying to get my Dr. to listen to me and hear the pain I have. It is so frustrating, the Dr. only gives pain meds if you have surgery, but I'm not bad enough to need surgery.So what do I do? I don't know where else to turn,no one understands when I try to explain it,they just say "Get a new Dr. or just ask him for pain Meds" if they only knew how hard it is to get your Dr. to listen to you let alone understand you.I'm sick&tired of not sleeping due to pain,driving in pain, doing my daily things with the pain. I hope someone out there can help me figure out how to get my Dr. to listen to me, and stop sending me for MRI's or EMGs.I have been off work since the 28th of Sept.

Hi Carla,

I'm sure we can help you with info and support , here's the link to our TOS forum. http://neurotalk.psychcentral.com/forum24.html

I'll copy this post to a new thread for you over there too- save you having to retype.
the link to your new post there - http://neurotalk.psychcentral.com/thread34854.html

Carla,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I see you have found the TOS link. Members there are so nice, they will assist you.

Again welcome, looking forward to seeing you around.

Darlene