Howdy Folks, I was on the old Lyme board here years back, Sarah Weiss back then a marriage or so ago*)! Now I am Sarah Olson.

Was very sick with bad neuro Lyme-

bradykinesia
chorea with athetosis in left hand
progressive weakness
progressive encephalopathy
fms
cfs
mcs
rls
tmj
choking
slurring
chorea major
claw hand
falling


NOW I AM NORMAL*)! on maintenance abx though. Last time I tried to go off I declined quickly-
but I am symptom free and can enjoy life again thanks to 9 months of IV Rocephin & treatment for Babesiosis, Ehrlichiosis & Bartonella.




Best wishes,
Sarah
aka
CaliforniaLyme

Hi Sarah and welcome to NeuroTalk

we have only been here since summer of 2006
we look forward to getting to know you

all the best and Happy New Year
Cheri
ps check your PM box

Hi, Sarah! Welcome to NeuroTalk!

You're new to me, so welcome again!

Hi there
Welcome back to Neurotalk, my name is Alison, I am 12 years old and I suffer from Reflex Sympathetic Dystrophy in my left leg and right arm.
If you need anything just ask
Thanx
Alison

WELCOME SARAH!!!
HAPPY NEW YEAR!
HUGS
CRITTER

Sarah,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. As you can tell we have a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

Thank you everybody*)!!!

This board is just great- the physical set-up of it- really a neat place.

Hey Alison, locally we had a Lymie whose Lyme manifested as RSD!!! Only one though, her name was Barbara B and she lives up in the Sierras now. Lyme can manifest in many ways- but she got all better. I am the Tick Borne Disease Support Group Facilitator for Santa CRuz County California, the #1 hotspot for Lyme in CA. It can manifest as or trigger different diseases in the body. We have had 4 ALSers, over a dozen MSers and 3 lupus people, too, and hordes of fibro and CFSers. Me, I was a neuro mutt, very Parkie. When I was on the other similar board before I was really sick but I have been symtpom free for years now, but have still not gone off antibiotics. I am breastfeeding my little one still (so ready to wean) and will try to go off once I stop.

Last time I tried to go off abx I started falling over within a week, so in a way I feel like I am living on borrowed time.

On abx I am normal.

Off I begin to get neurologically bad very quickly. I am late neuro Lyme.

But I was able to go back to work full time since being so sick, and able to remarry adn have anotehr child and enjoy life again. A reprieve!!! but I am so grateful because I know what it is like to have my life be gone by my own bodys betrayal-

Nice to meet all of you-
best wishes,
Sarah
aka
californialyme

Hi Sarah and Welcome to NT. Sounds like you have been through ALOT. Glad to have you with us. take care.