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Old 01-21-2008, 01:32 PM #1
xaxa xaxa is offline
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hi all!

not sure where i "belong", but have been visiting the dystonia forum for the past year or so....i will be 38 in march, and about 4 years ago was diagnosed with YOPD. however, i later developed blepharospasm, OMD, cervical dystonia, velopharyngospasm, and some left truncal dystonia. my current "diagnosis" is "primary dystonia with parkinsonism." i have only been on botox for the dystonias until about 6 months ago when i started mirapex which helps with my handwriting mostly and with the mild right sided tremor in my arm. my husband thinks the mirapex helps with everything a little but i don't know (sometimes i don't know what's going on with my body!) i seem to be a "jeckel and hyde" where i have right sided PD and left sided dystonia.... (altho i suspect i have parkinsonism throughout...).

anyways, that's that. hello to all and best wishes!

xaxa
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Old 01-21-2008, 01:48 PM #2
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WELCOME TO NEUROTALK, XAXA!!!
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Old 01-21-2008, 01:49 PM #3
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Hi! I'm new here also. I have MS. I look forward to reading more from you. Jules
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Old 01-21-2008, 01:50 PM #4
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Hello xaxa and welcome to NeuroTalk.

If you need any help finding your way around please let us know
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Old 01-21-2008, 01:50 PM #5
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Hi xaxa,

Welcome !

You will find NT to be a very warm and caring community.

Below is the link to our PD forum. Some very smart and knowledgeable folks there.

http://neurotalk.psychcentral.com/fo...aysprune=&f=34

Please lte us know if there is anything else we can help you with.
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Old 01-21-2008, 02:00 PM #6
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Hi xaxa,

I'm new to this forum, too,. I have MS. Looking forward to getting to know you and everyone else here!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Old 01-21-2008, 02:52 PM #7
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Xaxa..........welcome..........

come on in and sit a spell....let your fingers guid the way and check out all the room in this place...........lots to see and always something to be a part of........

Welcome,
Kay
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Old 01-21-2008, 02:55 PM #8
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Hi I'm new too!I have MS.

I look forward to getting to know you!
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