Junior Member
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Join Date: Jan 2008
Posts: 15
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Junior Member
Join Date: Jan 2008
Posts: 15
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new to forum
hi all!
not sure where i "belong", but have been visiting the dystonia forum for the past year or so....i will be 38 in march, and about 4 years ago was diagnosed with YOPD. however, i later developed blepharospasm, OMD, cervical dystonia, velopharyngospasm, and some left truncal dystonia. my current "diagnosis" is "primary dystonia with parkinsonism." i have only been on botox for the dystonias until about 6 months ago when i started mirapex which helps with my handwriting mostly and with the mild right sided tremor in my arm. my husband thinks the mirapex helps with everything a little but i don't know (sometimes i don't know what's going on with my body!) i seem to be a "jeckel and hyde" where i have right sided PD and left sided dystonia.... (altho i suspect i have parkinsonism throughout...).
anyways, that's that. hello to all and best wishes!
xaxa
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