New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 01-22-2008, 02:22 PM #1
Ted Poole Ted Poole is offline
New Member
 
Join Date: Sep 2007
Posts: 2
15 yr Member
Ted Poole Ted Poole is offline
New Member
 
Join Date: Sep 2007
Posts: 2
15 yr Member
Confused Myasthenia Gravis

I have had MG since November of 2004 and had a Malignan Thumus Gland removed. I have had numerous problems,
Had to be interbated 3 times and spent a lot of time in intensive care and the hospital.
I have been through the mill trying Cellcept, Imuran, and Cyclosporan after beeing on them for the time they thought reasonable changed from one to the other. I am on the staples, Prednisone, Mestinon etc. and last Sept was taken off Cyclosporin because it was damaging my Kidneys and didn't really seem to be doing anything. In the beginning of this month [January I started having problems with the usual muscle weakness, double vision etc. and my doctor thinks it's because I am off the Cyclosporin and want me to meet with my Nephrologist to see if I can go back on the Cyclosporin, while I am not looking forward to it because it makes me sick to my stomach all the time
and I am taking enough pills as it is I guess I have to do what I have to do.
Thanks for listening,
Ted........
Ted Poole is offline   Reply With QuoteReply With Quote

advertisement
Old 01-22-2008, 03:58 PM #2
ckepi's Avatar
ckepi ckepi is offline
Member
 
Join Date: Jan 2008
Location: Connecticut
Posts: 217
15 yr Member
ckepi ckepi is offline
Member
ckepi's Avatar
 
Join Date: Jan 2008
Location: Connecticut
Posts: 217
15 yr Member
Default

Welcome Ted sorry to here you are going thru so much.

I hope things start getting a little better for you.
ckepi is offline   Reply With QuoteReply With Quote
Old 01-22-2008, 04:16 PM #3
DM's Avatar
DM DM is offline
Legendary
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default

Hi Ted and Welcome to NT. Cyclosporin is powerful. My Son had a kidney transplant and started on Cyclo and Immuran. The side effects from the Cyclo were extremely harsh on him, so they switched him to Tacrilomas (Prograf) .. We found out 10 yrs later, that the Tacrilomas was damaging his new kidney, so he is now on Cellcept.

I cannot tell you which of them all is the lesser of the evils, but when your'e taking antirejection meds, it's a stall.

Hopefully, you can gather some good info here.

Welcome again..
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
Old 01-22-2008, 04:54 PM #4
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,855
15 yr Member
Default Hi there Ted.

I recognized the name.

Have you gotten a chance to interact with our Myasthenia Gravis forum yet?
Lots of good expertise and empathy over there:

http://neurotalk.psychcentral.com/forum77.html
glenntaj is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Useful Sites for Myasthenia gravis Bobbi Myasthenia Gravis 6 05-31-2015 09:38 AM
Myasthenia Gravis bobcatsrule Myasthenia Gravis 8 07-07-2013 09:09 PM
Hello! I am sad about Myasthenia Gravis Manatee New Member Introductions 7 11-27-2011 05:53 AM
My sister and Myasthenia Gravis cynwldkat Myasthenia Gravis 19 01-22-2008 02:54 AM
Myasthenia Gravis bobcatsrule New Member Introductions 5 01-07-2008 10:48 AM


All times are GMT -5. The time now is 12:48 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.