Yep, that's where I am. They keep changing what I have--you might have MS, you don't have MS, you have probable MS and had TM at some point, you do have MS and go on immunomodulatory drugs, you don't have MS and I'm not happy with you going on immunomodulatory drugs and never told you to go on them to begin with, you definitely have MS and can begin them immediately, I don't think that you have MS but think it's TM and I'm not sure that the immunomodulatory drugs are doing you any good so let's repeat an LP and VEPs and oh, hey, neuropsych testing too.

At this point, I'm not sure if I'm male, female, a hermaphrodite, have a neurological disease, can eat, speak, or think rationally without being told I can or cannot, am or are not, or will or will not. At least the radiologists say I have a brain, it's normal, and I can pull out reports and MRI scan films to prove the former statements. But hey, I've been on this rollercoaster for almost 5 years now and have gotten used to the up, down, possible, probable, nope, yep ride--sort of.

No Man's Land. Didn't expect to be back there again. I'm a refugee on an island of uncertainty again. And I get to repeat exceedingly fun tests--LP and neuropsych testing. Bonus!

Sooo..... now I'm on a quest to find out about TM, although I have loads of questions about fitting into that diagnosis snugly.

My name's Gazelle and I got that nickname young, when I could run as fast as one, which is pretty fast if you think about it. If only I could now.

Hiya.

Welcome ,
I see your finding your way around already.

Gazelle,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

Thanks for the welcome, Jo and Darlene. I'm sure that I'll find this home as it seems like a friendly online community.

G.

Given the controversies over what the proper diagnostic protocols for demyelinating central nervous system disorders are, your story is, unfortunately, not rare.

You'll find a lot of empathetic people to compare notes with here.

First I just want to say Hello and welcome to NT.

I am so sorry that you have had to go through all this.

I was dx'd with TM before I got my MS dx. Hopefully you will get some answers soon!

Good luck on your journey

Wow your story sounds eerily similar to what is happening to a dear friend of mine! It would be incredible if it turns out that you are actually that particular friend. Either way, I welcome you and am so sorry you have to experience the dx rollercoaster!! Unfortunately, this type of situation is too common.

Ditto.


(Beth just has a way with words. I think she is actually reading my thoughts. )

Hello and welcome.

My first dx was TM then within the next year all the other lesions decided to join the party. So now dx'd with MS. Although that first large lesion still likes to bully everyone around from time to time.

Welcome to the party! I don't like rollercoaster's myself as I am deathly afraid of heights! I guess it's a good thing I was dx'd rather quickly and the doc's haven't waivered with my dx.

I hope you get through all the garbage you are going through and one of the docs stick with a dx.

This is a great place to hang around and lots of good resources!

No man's land? Is that b/c you are female? LOL!

Is that a hairy chicken avatar? You need to find a Gazelle....