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Old 01-23-2008, 10:24 PM #1
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Gazelle Gazelle is offline
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Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Gazelle Gazelle is offline
Senior Member
Gazelle's Avatar
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Crazy No man's land...

Yep, that's where I am. They keep changing what I have--you might have MS, you don't have MS, you have probable MS and had TM at some point, you do have MS and go on immunomodulatory drugs, you don't have MS and I'm not happy with you going on immunomodulatory drugs and never told you to go on them to begin with, you definitely have MS and can begin them immediately, I don't think that you have MS but think it's TM and I'm not sure that the immunomodulatory drugs are doing you any good so let's repeat an LP and VEPs and oh, hey, neuropsych testing too.

At this point, I'm not sure if I'm male, female, a hermaphrodite, have a neurological disease, can eat, speak, or think rationally without being told I can or cannot, am or are not, or will or will not. At least the radiologists say I have a brain, it's normal, and I can pull out reports and MRI scan films to prove the former statements. But hey, I've been on this rollercoaster for almost 5 years now and have gotten used to the up, down, possible, probable, nope, yep ride--sort of.

No Man's Land. Didn't expect to be back there again. I'm a refugee on an island of uncertainty again. And I get to repeat exceedingly fun tests--LP and neuropsych testing. Bonus!

Sooo..... now I'm on a quest to find out about TM, although I have loads of questions about fitting into that diagnosis snugly.

My name's Gazelle and I got that nickname young, when I could run as fast as one, which is pretty fast if you think about it. If only I could now.

Hiya.
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