[CathyG]

Hello!

My son is 5 and he was diagnosed with a large arachnoid cyst on the left temporal lobe last week. We are currently waiting to hear if the neurosurgeon wants to operate on it, or wait and see. I had never even heard of this condition until last week, so am looking for information from other people who have experience of this. The doctor said it is the size of a small apple. He doesn't seem to be experiencing symptoms thankfully, other than the head bulging which is what led us to see the doctor in the first place.

Look forward to hearing from other people

thanks

Cathy

[tamiloo]

I'm sure one of our Mods with chime in to say welcome and give you a helping hand...here is a hug...at least that helps sometimes...

[Koala77]

Hello Cathy and welcome to NeuroTalk.

I'm so sorry to hear that you're going through this with your son. It's ever so scary when loved ones go thorough something like this, let alone one of our children. Us mother's would always take these conditions onboard and have the operations ourselves, if only we could spare our children. What a shame it doesn't work like that.

I've given you a couple of links here where I hope you'll get advice and the support that you will obviously need.

Here's the link to our Hyrocephalic Forum : http://neurotalk.psychcentral.com/forum14.html

This one is to our Rare Disorders Forum: http://neurotalk.psychcentral.com/forum2.html

Try those, but let us know if we can help in any other way. Hugs to your little man.....

[Kitty]

Hi Cathy and welcome to NeuroTalk! I'm so sorry your little one is having to experience this. There are lots of very caring and helpful people here and I'm sure you'll find lots of support and information on the forums that Koala provided you with. Glad you're here!

[AfterMyNap]

Hi, Cathy! Welcome to NeuroTalk!

Poor little guy, tell him that I'll be praying for him.

[DM]

Hello Cathy and Welcome to NeuroTalk. Sorry to hear of your son's problems and hope that you can find some comfort of info here that will be helpful. Really glad you found us.

[Maile]

Hello, I am sorry about your son, I have an arachnoid cyst in the poster fossa (back of the brain) I know what it is like to live with this condition and it is not fun, so my heart goes out to you and your son.
There is this great place that is called the skullbaseinstitute.org If I spelled it correctly. the acctual place is in LA, CA. their is a wonderful doctor that opporates on this and other conditions. there is a program called Davids foundation and he is a 12 year old boy that is the ambassodor for the program there. He was featured on the ellen show. if you have the time go to the web site and check it out. it has information about arachnoid cyst's and how they are opporated on. they also have information about conseltaions. They will fly you out and rent a hotel room and if you don't have the money for the surgery they will pay for it. Good luck to you and your son.
Maile

Originally Posted by CathyG

Hello!

My son is 5 and he was diagnosed with a large arachnoid cyst on the left temporal lobe last week. We are currently waiting to hear if the neurosurgeon wants to operate on it, or wait and see. I had never even heard of this condition until last week, so am looking for information from other people who have experience of this. The doctor said it is the size of a small apple. He doesn't seem to be experiencing symptoms thankfully, other than the head bulging which is what led us to see the doctor in the first place.

Look forward to hearing from other people

thanks

Cathy