[Gram]

My name is Deb, we are raising 3 granddaughters, our 12 year old has RND, just found out in october. I t all started with a bad asthma attack that lasted 3 weeks, we had an ENT doctor check her out and he thought it was a good idea to put her under and she what was going on, she ended up in recovery and could not walk on her legs. Well same as most went to every doctor to find out why, ran all kinds of test, all came back find, remarks given to us its all in her head, we new better, we knew something was wrong, found a arthritis doctor that told us what was wrong. She goes to physical theraphy twice a week, she will be going into childrens institute I hope soon, It is under doctor sherry, I have been talking to alot of people and they say its great. I dont know if anyone has heard of elizabeth elster she wrote a book POWER THROUGH PAIN, its really good it did help our girl understand a little more of what was going on.Sorry for being so long but this subject I quess you can go on forever.

Thanks for Listening
Deb

[dreambeliever128]

Welcome to the forum.

We have a lady on the RSD forum here that has a son that was just diagnosed with RND. I am trying to think of her name but at this time I can't.

If you go over to the RSD forum and ask about the RND you will get a lot of answers and lots of support. I will try and get her name for you in the meantime.

I hope you stick around.
Ada

[Gram]

Originally Posted by dreambeliever128

Welcome to the forum.

We have a lady on the RSD forum here that has a son that was just diagnosed with RND. I am trying to think of her name but at this time I can't.

If you go over to the RSD forum and ask about the RND you will get a lot of answers and lots of support. I will try and get her name for you in the meantime.

I hope you stick around.
Ada

Ada thanks but it might take me a while to search around here lol

Deb

[DM]

Hi Deb and Welcome to NeuroTalk. Take a look around and let us know if you need anything. Glad you found us.

[Darlene]

Deb,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Just let us know how we can assist you.

Again welcome, looking forward to seeing you around.

Darlene

[MSCherokee]

Hiya Deb and welcome to Neuro Talk!

[ali12]

Hey,
My name is Alison, I am 13 years old and I suffer from RSD (which is a different name for RND) in my left leg and right arm. If you ever want to chat you can, I will try and help you if I can.
Thanks and welcome to Neurotalk.
ALison

[Gram]

I want to thank every one for the warm welcome, I am so glad I found this site that knows RND, I found many other sites but they never heard od RND, so there for they would not reply back

Thanks Again

Deb