Hi, I'm terrified. My son just turned 21 two weeks ago and two days later was diagnosed with RSD. He gets his first ablation treatment
in the morning. He got a cane yesterday and it breaks my heart. I am terribly depressed...he was not supposed to get old before me. He has two beautiful little girls and sometimes has a real difficult time picking them up. My heart is broken for him, his girls and his wife.

if you are referring to Reflex Sympathetic Dystrophy -
I am sorry to hear this, yet you are not alone - here is the link to that forum....

http://neurotalk.psychcentral.com/forum21.html

Hi Melody and Welcome to NeuroTalk. I know how worried you are as a Mom; I have a son w/many health issues, but it doesn't matter how old your kid's get, we still worry about them.

Glad you are here and like CTena said.. Check out our RSD forum. There are many other forums here w/so much info.

Take care and let us know if you need anything.

Hi, thank you so much for your responce. I've been feeling so alone and depressed...so this has really helped.
Melody

Hi Melody and Welcome to Neurotalk!!

I see that you've found your way to the RSD forum. You will find a WONDERFUL, Caring, and supportive group of people at the forum and everywhere here at Neurotalk!!!

I understand your fears for your son.

I too have RSD. Please know that everyone of us with RSD is different. No two cases are the same nor do we respond the same medicines or treatments.

My suggestion... and only a suggestion is to find a pain management specialist who has a strong knowledge of RSD.

I have heard that if caught early RSD can be put into remission with various treatments including nerve blocks.

The RSD forum is a wealth of information. If you have any questions please don't hesitate to ask... someone will be along shortly to help you out the best that we can.


Abbie

Thank you Abbie,

It feels good to not feel so alone...but sad at the same time...I don't want anyone to go through this. Is there any way you know of to raise awareness about this issue? How do you find a pain doctor that understands RSD and isn't just "experimenting"? I am so afraid that that is what they are doing with my son, but I don't really know. It seems like no one understands RSD, or they would have diagnosed him a year and a half ago. My son really likes his doctor...so I'm just not sure what to think...I just know I'm beside myself with fear.
Thank You very much.
Melody

I'm not sure if I am doing this right but I wanted to say thank you so much. I will be checking out that forum shortly.

Hi, Melody! Welcome to NeuroTalk!

I see that Abbie has given you some great starting points, so I'll just add that you are welcome to join in anywhere.

Hi Cindy,
Thank you for your note. I'm going to go see if I can get a nap...got to work tonight.
Thank you,
Melody