[BMTRN]

I was looking online about side eferct of prednisone and ran across a posting fro CRYTEARS. I an an RN at a university hospital that takes care of bone marrow transplant patients. CRY was on multiple meds that the transplant patients are on. I see the types of side effecs everyday. Docs find it very hard to pinpoint the cause of things sometimes. But on the other hand, I think that if healhcare providers would just SLOW DOWN a little bit more problems would at least be acknowleged as real, even if they cannot fix them! no person wants to be told they are not feeling what they know they are feeling! All health care providers need to take the time they need with each patient. We are not machines that can be fixed in our 15 minute time allotment!!!!! I am a healthcare provider and I refuse to leave the room until my patient is finished telling me about his condition and how beautiful and smart his grandchildren are if that is what he wants me to know. That may be what is most important to him and by knowing that I may be able to get his promise that he will be compliant. CRYTEARS, if you ever see this posting, I want you to know that this nurse understands and would have listened intently without raising one eyebrow. Then I would have done my best to on the MDs until they figured it out. I hope you are well. BMTRN

[lou_lou]

dear bntrn

yes - I agree... pain is a signal from the body: spirit soull as well
relaying messages to our mind that something isnt right...

[mrsD]

and further there ARE things YOU CAN DO to help patients on steroids.

There is a medical reference that explains nutrient deficiencies induced
by common drugs:

http://www.amazon.com/Drug-Induced-N...4119414&sr=8-2

and there is another less medical more lay oriented:

http://www.amazon.com/Side-Effects-B...4119491&sr=8-1

The first link reference has all the abstracts in it as well.

For example prednisone is known to affect the following:

Zinc
Calcium
Selenium
Magnesium
potassium
Folic Acid
Vit C
Vit D

Dietary changes and recommendation to patients to target these nutrients, and supplements perhaps (Vit D, magnesium, potassium) may help tremendously with treatments.

These two references are real eye openers.... I suggest them frequently online to interested readers.

[DM]

Hi bmtrn and Welcome to NeuroTalk.

[bluemoon]

Thanks Bmtrn for that post!

If more doctor's had your attitude of 'listening' and and perhaps thinking 'outside the box' on certain occasions, I think many people would be diagnosed a little sooner than say....over 20 years.

Thanks for your dedication to caring for people! I had one neurologist actually ask me if I was "done" listing my symptoms?

I was eventually diagnosed with myopathy/denervation of unknow origin, and the antiphospholipid syndrom with lupus. Among other issues. Go figure.

[Idealist]

Glad to meet you! You sound like the kind of nurse I'm always hoping for when I have to go see the doc again. And you're absolutely right. I've read studies which showed that a patient can feel better just by being listened to and taken seriously, with a plate of humanity on the side. Talking focuses the brain away from the pain. You can have two lines of thought at one time, but you can only really focus on one of them. Kudos to you for your kindess and patients with your patients.

And Bluemoon, amen to your post. I've been to 28 doctors and counting, and I still have nothing more to show for it than a few theories. Everyone I see seems to have their own standard set of tests to give no matter what you are feeling. I was even given a EKG, when my problem is abdominal pain!

[MorningBroken]

So sorry to hear of your misfortune. Glad you found your way here however.

I hope you find the answers and the help you need.

God Bless you and Yours!!!

Dawn

[bluemoon]

Idealist,

Your 'answers' ARE out there! Believe in yourself, and don't give up. I was fortunate that I came across a group of doctors who took me seriously....after many, many, years.

I had been suffering with these outrageous headaches that wouldn't quit, and one of the doctor's, on a lark, decided to checked my 'prothrombin time', and a bunch of other stuff that went with it. It all came back abnormal.

The next doc was a hematologist, but he blew me off saying the range was not that far off. Too bad I had a series of small strokes within 2 months of that blood work. I was diagnosed with the 'antiphospholipid syndrom' and put on blood thinners for a while then changed to daily aspirin.

My story keeps going...another time.

The best to you in your journey of diagnoses.