FAQ/Help |
Calendar |
Search |
Today's Posts |
|
New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
Reply |
|
Thread Tools | Display Modes |
03-08-2008, 04:13 PM | #1 | ||
|
|||
New Member
|
I am working on a potential story for NPR about the harmful effects of oral steroids. If you or someone you know has been affected by taking oral steroids I would like to hear your story.
I know this can be a very delicate and sensitive matter. All information will be held in confidence. thank you for your time and I look forward to hearing from you soon Daniel |
||
Reply With Quote |
03-08-2008, 07:28 PM | #2 | |||
|
||||
Elder
|
Hi Daniel
I have MS and have taken Oral Steroids in the past. I have also been on IV Steroids (methylprednisolone) over the past 7 years...let me know if I can help with your story. I am not quite sure what you need. Feel free to send me a Private Message for more information.
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
Reply With Quote |
03-08-2008, 08:22 PM | #3 | ||
|
|||
Grand Magnate
|
HI Daniel,
IN the past I took a high dose of steroids for about 4 months for an autoimmune illness. Took over a year for my adrenals to recover. Please let me know if there is anything specific you would like to know. |
||
Reply With Quote |
03-08-2008, 11:49 PM | #4 | ||
|
|||
Member
|
Quote:
Have I been "affected" by taking oral steriods? You bet! Positively. My doctor and I plan to treat my MS with oral solumedrol every three months. The hope is that this treatment will keep me "thinking" clearly and functioning in society. But why do I think this isn't really what you're looking for?
__________________
~Victorya~ ------------------------------------------ Spring 2002/present - Double Vision Feb./Dec. 2004 - Optic Neuritis Dec. 17,2004 - Diagnosed RRMS Feb. 9, 2005 - First Rebif injection Mar. 7, 2006 - "Copaxonator" ------------------------------------------ |
||
Reply With Quote |
03-09-2008, 11:02 AM | #5 | |||
|
||||
Wise Elder
|
Hi, Daniel! Welcome to NeuroTalk!
If you are referring to oral prednisone dosepacks, my only issue with taking it is my appetite; it makes me willing to eat anything and everything— I've even caught myself eyeing furniture and shoes! I've had many rounds of IVSM and it really doesn't faze me in any notable way.
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
Reply With Quote |
03-10-2008, 10:58 AM | #6 | |||
|
||||
Magnate
|
Hello and welcome to Neurotalk - you will find many great people here!!
If you need anything just ask - I will try and help you if I can Thanks Alison
__________________
To the World you may be one person, but to one person, you may be the World. |
|||
Reply With Quote |
03-10-2008, 01:29 PM | #7 | |||
|
||||
Legendary
|
Hi daniel and Welcome to NeuroTalk. I have taken the oral Roids, *med pro packs, I think*. Unlike Cindy, I completely lost my appetite while on them and would lose a few pounds... Haven't taken them for a while, but my Dr wanted me to....
*hide your heirloom furniture*
__________________
DM . |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
How much STEROIDS? | Multiple Sclerosis | |||
2 Questions.....Steroids....Mobility....Anyone? | Multiple Sclerosis | |||
just an aside re steroids and CRPS-1 | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Pain with steroids? | Myasthenia Gravis |