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Old 03-08-2008, 04:13 PM #1
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I am working on a potential story for NPR about the harmful effects of oral steroids. If you or someone you know has been affected by taking oral steroids I would like to hear your story.

I know this can be a very delicate and sensitive matter. All information will be held in confidence.

thank you for your time and I look forward to hearing from you soon

Daniel
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Old 03-08-2008, 07:28 PM #2
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Hi Daniel

I have MS and have taken Oral Steroids in the past. I have also been on IV Steroids (methylprednisolone) over the past 7 years...let me know if I can help with your story. I am not quite sure what you need. Feel free to send me a Private Message for more information.
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Old 03-08-2008, 08:22 PM #3
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HI Daniel,

IN the past I took a high dose of steroids for about 4 months for an autoimmune illness. Took over a year for my adrenals to recover. Please let me know if there is anything specific you would like to know.
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Old 03-08-2008, 11:49 PM #4
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Quote:
Originally Posted by DanielJ View Post
... If you or someone you know has been affected by taking oral steroids I would like to hear your story...
In the past I have taken IV solumedrol, oral prednisone, and more recently I have been consuming my solumedrol orally in orange juice (affectionately known as a "solumedrol smoothie").

Have I been "affected" by taking oral steriods? You bet! Positively. My doctor and I plan to treat my MS with oral solumedrol every three months. The hope is that this treatment will keep me "thinking" clearly and functioning in society.

But why do I think this isn't really what you're looking for?
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Old 03-09-2008, 11:02 AM #5
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Hi, Daniel! Welcome to NeuroTalk!

If you are referring to oral prednisone dosepacks, my only issue with taking it is my appetite; it makes me willing to eat anything and everything— I've even caught myself eyeing furniture and shoes!

I've had many rounds of IVSM and it really doesn't faze me in any notable way.
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Old 03-10-2008, 10:58 AM #6
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Hello and welcome to Neurotalk - you will find many great people here!!

If you need anything just ask - I will try and help you if I can

Thanks
Alison
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Old 03-10-2008, 01:29 PM #7
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Hi daniel and Welcome to NeuroTalk. I have taken the oral Roids, *med pro packs, I think*. Unlike Cindy, I completely lost my appetite while on them and would lose a few pounds... Haven't taken them for a while, but my Dr wanted me to....

*hide your heirloom furniture*
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