NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   Hi to All Neurotalk Forum Members (https://www.neurotalk.org/new-member-introductions/41123-hi-neurotalk-forum.html)

Lara 10-14-2014 12:36 AM

Hello Gregg,

Welcome to the NeuroTalk Support Groups.

It sounds as if you're feeling a lot better than you were months ago.
Well done.

Peripheral Neuropathy Forum

There is also the PN subforum
PN Tips, Resources, Supplements & Other Treatments Forum

Diabetes / Insulin Resistance / Metabolic Syndrome Forum

If you just click on those links, you will go straight to those forums.

Take care.

Kitt 10-14-2014 08:50 AM

Welcome greggreyes. :Wave-Hello:

seablue 08-02-2015 10:35 PM

new memeber
 
Hi all I'm new to this site I hope I got the right posting area had quite a time finding some where to post I'm 53 and counting I believe DejaVu got some info on me Lets see I had 42 surgerys and one coming this week a double discectomy with two huge hernia's, I never had my back or at least spine done I did yrs ago in the army had to have a spinal tap never again quite scared now I used be a medical tech and yrs ago contracted hep c from a patient and now I have diabetes ,cancer, had half my left foot amputed,cirrhosis of the liver the list goes on, so I'm asking if anyone has gone through any o these and what options you had or are going through right now any help would be appreciated Thanks seablue

Diandra 08-04-2015 11:56 AM

Quote:

Originally Posted by seablue (Post 1159605)
Hi all I'm new to this site I hope I got the right posting area had quite a time finding some where to post I'm 53 and counting I believe DejaVu got some info on me Lets see I had 42 surgerys and one coming this week a double discectomy with two huge hernia's, I never had my back or at least spine done I did yrs ago in the army had to have a spinal tap never again quite scared now I used be a medical tech and yrs ago contracted hep c from a patient and now I have diabetes ,cancer, had half my left foot amputed,cirrhosis of the liver the list goes on, so I'm asking if anyone has gone through any o these and what options you had or are going through right now any help would be appreciated Thanks seablue


Hi Seablue,
Welcome to the forums.
You did a good job making it to the new members forum and introducing yourself.

My goodness, 42 surgeries and 53 yrs olds....you have endured so much.

My brother was also in the service and had the beginning of cirrhosis of the liver. His was from drinking and his doc told him to stop or he'd kill himself. I got him taking milk thistle( also called SILYMARIN) and he cleared his liver in 6 months.
I take it daily to cleanse my liver because I take alot of meds for pain every day.

I have never had spinal surgeries but many here have and you can find them at
the forums on Spinal Disorders. I would suggest you start a new thread for yourself on that forum and ask specific questions you may have today about your upcoming surgery, could be something as simple as what to expect or what is recovery like.

Glad you made if here. Best of luck on upcoming surgeries.

May I ask, Where does Seablue come from?
Are you a lover of the ocean, as I am....grew up in Boston and spent my childhood going to cape cod and Martha's Vineyard.

My best, Diandra

P.S.
Your intro was tacked onto the end of someone else's, I am going to ask the moderators if they can move it to a new thread that is just for you so more people will see it.

Chemar 08-04-2015 12:20 PM

the Intro by seablue is already pasted on to her other thread here:

http://neurotalk.psychcentral.com/thread223978.html

Sumay 08-23-2019 10:29 AM

New here with CIPN
 
Hello to all! I am a 71 year old woman with serious CIPN which developed in January of 2017. I had breast cancer and took the AC combination followed by Taxol. I had to stop the Taxol 2 weeks early as my hands and feet were very sore, numb, burning, and felt like they were coated with sand. I was prescribed gabapentin, but it had no effect. I was then prescribed a low dose of Lyrica, but it did not help. In the meantime, my CIPN spread up my legs to my abdomen, on my arms up to the shoulders, back, and skull. I was referred to a neurologist.

My neurologist restarted the Lyrica and paired it with venlafaxine, a mood stabilizer. Mentally I felt so much better! Gradually the Lyrica has been increased and I have some relief, though on the 1-10 pain scale I am a 4-6 when up and active and a 2-3 when sedentary. I have found wearing heavy gloves helps avoid the pain and calms my nerves when I hurt badly.

Unfortunately, my neurologist is leaving a large national group and she signed a no compete clause and can't practice in my area for a year. I am so bummed! Our appointments were relaxed and she carefully listened to me! I will miss her so much!

I am glad to have found you all and hope to learn from you and share when I can..


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